Talk:CLOVES syndrome

note
There are now 150 people worldwide with CLOVE syndrom. — Preceding unsigned comment added by 2601:248:8003:DF8A:E5A5:8943:74DA:957B (talk) 02:01, 8 September 2015 (UTC)

External links modified
Hello fellow Wikipedians,

I have just modified 1 one external link on CLOVES syndrome. Please take a moment to review my edit. If you have any questions, or need the bot to ignore the links, or the page altogether, please visit this simple FaQ for additional information. I made the following changes:
 * Added archive http://web.archive.org/web/20150402145658/http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/1266/viewAbstract to http://www.rarediseases.org/rare-disease-information/rare-diseases/byID/1266/viewAbstract

When you have finished reviewing my changes, please set the checked parameter below to true or failed to let others know (documentation at ).

Cheers.—cyberbot II  Talk to my owner :Online 04:04, 25 May 2016 (UTC)

Treatment
Today 14 June 2018 we find on french press a public announcement of a successful experimental treatment (with simply one pill per day). I think it's great news for the concerned persons if they not already informed (19 persons already saved, said the press article). The idea was to reuse a medic developed for another purpose by Novartis (Dr Guillaume Canaud, of "hôpital Necker Enfants malades (AP-HP)" Paris, end 2015). I don't know how to modify the main wiki article. I can provide one link in French : https://www.francetvinfo.fr/sante/maladie/premiere-mondiale-une-therapie-ciblee-fait-regresser-des-maladies-evolutives-incurables_2800137.html — Preceding unsigned comment added by 193.8.200.4 (talk) 13:30, 14 June 2018 (UTC)