Talk:David Sheffield Bell

Notability
Right now this article does not show David Bell notability. A list of publications does not make some one notable, at least the recent one is self published and another one, Bell is just co author. Pls see notability guidelines like WP:PROF and WP:CREATIVE. RetroS1mone  talk  13:09, 8 January 2009 (UTC)


 * Ward20 has added Bell's medline articles, and it shows that Bell has not published much, notable scientists mostly have hundreds of publications, they are not listed all in their articles. RetroS1mone   talk  00:52, 9 January 2009 (UTC)


 * WP:PROFBIO, when you are using citation rates for notablety, "several extremely highly cited scholarly publications or of a substantial number of scholarly publications with significant citation rates."

RetroS1mone  talk  03:26, 9 January 2009 (UTC)

Possible topics for inclusion or expansion
Early biographical information

Search google CV and so forth

Instructor of pediatrics Harvard Medical School.

David Bell, MD, Associate Clinical Professor, Dept. of Pediatrics, University of NY Buffalo

Investigated, treated and published on the CFS outbreak in Lyndonville, New York and CFS 1984-present specialty pediatrics

Noteable outbeak CFS in Lyndonville NY 1984-1985. Bell sole practioner in area to notice? Search: google, google books, Hillery Johnson's Osler's Web, Magazines, Newspaper aticles, Documentary I remember me

Supplied samples for research on the Defreitas virus in the late 1980s.

source.PRIME TIME LIVE, Wednesday 3/27/96 Segment: Sick & Tired. Sam Donaldson, Nancy Snyderman, M.D. [Good Morning America], Paul Cheney M.D., various PWCs, Hillary Johnson [Osler's Web author], Elaine DeFreitas [researcher]

Not sure if this article talks about bell. On the track of an elusive disease. Science J Palca, Science 20 December 1991:Vol. 254. no. 5039, pp. 1726 - 1728 DOI: 10.1126/science.1662410

Lectured all over the world on CFS.

Other Publications

Journal of Child Health Care, Vol. 3, No. 2, 27-32 (1999) DOI: 10.1177/136749359900300207 Streeten, David H. P., and Bell, D. "Circulating blood volume in chronic fatigue syndrome." JCFS, vol. 4 (1) 1998; 3-11.

Bell DS. Illness onset characteristics in children with chronic fatigue syndrome and idiopathic chronic fatigue. Journal of Chronic Fatigue Syndrome 1997; 3(2): 43-51.

Bell D. Chronic fatigue syndrome in children. Journal of Chronic Fatigue Syndrome 1995; 1(1): 9.

Bell DS Chronic fatigue syndrome in children and adolescents: a review. Focus Opin Pediatr 1995; 1:412-420

Absence of Antibody to Mycoplasma fermentans in Patients with Chronic Fatigue Syndrome Anthony L. Komaroff, David S. Bell, Paul R. Cheney and Shyh-Ching Lo Clinical Infectious Diseases, Vol. 17, No. 6 (Dec., 1993), pp. 1074-1075

Publishes The Lyndonville News, for support, advice, recognition, and information to persons with chronic fatigue syndrome (CFS), fibromyalgia (FM), myalgic encephalomyelitis (ME), and related, difficult to define, illnesses. 

Affiliations

Name Change Advisory Board, January 2007

Editorial board Journal of Chronic fatigue Syndrome?

Others?

Ward20 (talk) 21:34, 11 January 2009 (UTC)


 * "What he found shocked the medical community. His diagnostic testing concluded that Epstein Barr Virus (EBV) was not the cause of the outbreak, and therefore debunked the widely held belief at the time that EBV is the cause of ME/CFS. “While EBV can still be a trigger, the illness has evolved into a post-infectious phenomenon,” explains Dr. Bell. He continues his “1985 Lyndonville Outbreak” study today, making it the longest running continuous ME/CFS follow-up study ever conducted." Ward20 (talk) 03:26, 11 February 2009 (UTC)

Bell's CFS Ability scale
This section is not original research. The cited reliable sources, "are directly related to the topic of the article, and that directly support the information as it is presented". Ward20 (talk) 06:48, 3 February 2009 (UTC)
 * The topic of article is DS Bell. The primary sources are not about DS Bell. They are not about the scale. One primary source uses the scale. One says about it. The government one says, there are lots of measures they can use here are some and the scale is one from the last. The australian one, it is on lobby web sites and the fourth google is this article!! When no secondery source about scale and influence it is original research. Here is synthesis on primary source in, in, indirectly related. RetroS1mone   talk  03:53, 4 February 2009 (UTC)

Bell's CFS Ability scale
Is the material discussed in the section above verified by sources or  original research? &mdash;Ward20 (via posting script) 04:27, 4 February 2009 (UTC)

The RFC was intended to address the material in the box above but an editor changed it in the article with claims, "he modifies the Karnofsky scale", and "he argues the name chronic fatigue syndrome should be replaced", which do not appear in the sources.Ward20 (talk) 21:00, 5 February 2009 (UTC)

Discussion of edit
The editor removed material and the edit summary said, "quote when you are taking stuff from a source like that part from hhs."

The removed material stated, "The committee also advises on development and implementation of informational programs about advances related to CFS to the public; health care professionals; the biomedical, academic, and research communities".

The source actually states,"The advisory committee is also charged with advising on the development and implementation of programs to inform the public; health care professionals; and the biomedical, academic, and research communities about advances related to CFS." It wasn't a direct quote.

The rest of the edit is a WP:NPOV violation. Ward20 (talk) 05:25, 4 February 2009 (UTC)
 * The editor says NPOV it was a quote from the book how is that more NPOV then the editor's own version. The editors copy sentence is exact same just a word and two moved that is copying. I saw that in alot of the CFS articles before they should pls quote it when the editor want to copy stuff. RetroS1mone   talk  05:32, 4 February 2009 (UTC)


 * The committee material is not a direct quote and the information came from a work from the US government. "Works by the U. S. government are not eligible for U. S. copyright protection.". There were no copy or copyright issues and the RSed material was wrongly removed, but I will compromise and add the material back as a direct quote. Ward20 (talk) 20:21, 5 February 2009 (UTC)


 * The edit also changed the material the RFC was about and makes it difficult to comprehend. I won't edit war over this, but would appreciate it if someone would revert the edit for the sake of the RFC. Ward20 (talk) 05:44, 4 February 2009 (UTC)
 * RFC materials still there. RetroS1mone   talk  13:01, 4 February 2009 (UTC)

Cellular Hypoxia and Neuro-Immune Fatigue, WingSpan Press (July 10, 2007), ISBN 978-1595941794
The book is self published but WP:SPS states, "Self-published work is acceptable to use in some circumstances, with limitations. For example, material may sometimes be cited which is self-published by an established expert on the topic of the article, whose work in the relevant field has previously been published by reliable third-party publications." Bell is established as a expert in the relevant field by the U.S. Department of Health & Human Services , and his work in the field has previously been published by reliable third-party publications. The only claim that is asserted is that he wrote the book so the information is reliable and verifiable. Ward20 (talk) 05:30, 7 February 2009 (UTC)


 * Bell is not on the HHS thing any more i think, it was a year or two years?? And is the committee notable, it is just in government register a primary and the HHS press release a primary. And the second source that says about it says the HHS does not take the committee serious. I think it was set-up by HHS like, ok we do not agree so we give you activists a committee and let you meet all the time and talk about your stuff. I think it needs reliable independant second sources. RetroS1mone   talk  14:34, 7 February 2009 (UTC)


 * Here is a secondary source for bell's chairmanship.. The U.S. Social Security Agency looks to the Chronic Fatigue Syndrome Advisory Committee to keep them up to date.


 * "One way in which SSA tracks new information on CFS is as an ex officio member of the Chronic Fatigue Syndrome Advisory Committee (CFSAC). The Committee provides science-based advice and recommendations to the Secretary of Health and Human Services on a broad range of issues and topics pertaining to CFS. SSA is also an ex officio member of the Patient Care/Quality of Care subcommittee of the (CFSAC). In addition, the SSA medical officer responsible for CFS is currently performing a medical literature review on recent medical advances in CFS."


 * It does not matter much WP:PRIMARY:
 * "Our policy: Primary sources that have been reliably published (for example, by a university press or mainstream newspaper) may be used in Wikipedia, but only with care, because it is easy to misuse them. Any interpretation of primary source material requires a reliable secondary source for that interpretation. Without a secondary source, a primary source may be used only to make descriptive claims, the accuracy of which is verifiable by a reasonable, educated person without specialist knowledge. For example, an article about a novel may cite passages from the novel to describe the plot, but any interpretation of those passages needs a secondary source."


 * This material is not interpreting anything that is not described in the text, we can quote the text verbatum if necessary. The secondary sources can be added for backup but don't take out the expert wording or the description of the scientific advice that CFSAC provides as that pertains to Bell's expertise and notability.
 * Ward20 (talk) 00:48, 8 February 2009 (UTC)

IACFS/ME
I am sorry the IACFS/ME is not notable organization. News that says about it is from two or three press release one is about Montoya and other about Klimas and the rest is Townsend Letter, totaly not reliable. IACFS is like a club for people some doctors and researchers and social workers and patients that are out of main-stream medical, and they write lots of papers they review themself and publish in their journals and newsletters. Pls, this stuff needs reliable independant second sources or it is not going in. Thx RetroS1mone   talk  14:34, 7 February 2009 (UTC)


 * The IACFS/ME is specifically described in the J Psychosom Res (second source) as the only professional organization representing the concerns of CFS researchers and clinicians around the world. It's hosting the 9th international conference on CFS. Ward20 (talk) 01:07, 8 February 2009 (UTC)


 * Posted at Reliable sources/Noticeboard Ward20 (talk) 01:28, 8 February 2009 (UTC)


 * J Psychosom Res is a primary source, it is a statistical analysis from literature trends. RetroS1mone   talk  01:34, 9 February 2009 (UTC)


 * "J Psychosom Res is a primary source, it is a statistical analysis from literature trends." That statement's preposterous. WP:SECONDARY "Secondary sources are at least one step removed from an event. They rely for their facts and opinions on primary sources, often to make analytic, synthetic, interpretive, explanatory, or evaluative claims." Ward20 (talk) 01:55, 9 February 2009 (UTC)
 * It is not a review it is a statistics analysis of topics that is primary research. But main thing is, it is not a review of IACFS ME or David Bell. A notable organization has significant second sources about it, there are not about IACFS ME. When you are going that deep to a primary research cited by zero people to find some thing just saying their name, what does that mean about notability. RetroS1mone   talk  02:20, 9 February 2009 (UTC)
 * RetroS1mone, the quote is from the introduction of the article talking about the small number of researchers in this field. The article specifically talks about IACFS/ME (please note the correct name) being the only dedicated professional organization in the field. Stop shifting the goal posts and stating incorrect information. There are secondary sources. Ward20 (talk) 03:57, 9 February 2009 (UTC)
 * Ward20 i think you are confused about reliable independant second sources. Newsletters of activist organization and web site is not independant second sources. HHS press release is not second source. A quote from a primary research article that is not cited by any one is not a good source. RetroS1mone   talk  15:14, 9 February 2009 (UTC)

OK Ward20 what are you doing. The links you are giving are most of them primary sources and self published by activist group web sites and a opinion thing from David Bell. Do you think notability means how many times are you mentioned in your club's newsletter on line or how many times you mention your self?? There is a USA Today article, that is a reliable source but it has a quote from David Bell it is not about David Bell and it does not say any thing about IACFS. We are discussing if IACFS is notable or David Bell being on a board of it is notable. So not relavent. The SF chronicle article is based from press release from activist organization and it is written from a activist author who plugs her book in it, so it is not independant and who cares, it does not say any thing about IACFS. Pls read articles before you give a list of not relavent stuff like this, i think it is very mis-leading. RetroS1mone  talk  15:24, 9 February 2009 (UTC)


 * I apologize about mixing up the sources. I was sloppy last night and did not take time to separate out the secondary sources from primary. I should have said here are "some" secondary sources.


 * I disagree that organizations such as The CFIDS Association of America that talks about the IACFS/ME conferences on this page, the National Women's Health Resource Center Inc info about the mission of the IACFS/ME, and the HHV-6 Foundation brochures that talk about the mission of the IACFS/ME are not reliable secondary sources. They have boards of directors, scientific advisors, and editorial staff. These sources do not describe the IACFS/ME as a "club". The USA Today article is not about David Bell but it does state, "David Bell, a national CFS specialist who was one of the first researchers to study the disease." and specifically talks about one of his studies, mentioning him by name. There are about 5 or 6 other secondary sources in the list above that talk about Bell and his opinions. a Medscape article calls him, "an internationally recognized expert on adult and pediatric CFS."


 * It seems as though you are asking for a source that specifically states how David Bell's board membership in the IACFS/ME is notable in order to include it in the article. It is published David Bell held a board membership in the IACFS/ME. An editor at the reliable sources/Noticeboard believed it was reliable. The J Psychosom Res describes the IACFS/ME, and so do other secondary sources. The article should attribute and present the IACFS/ME description so the reader can understand what Bell was a board member. You had no problem with describing the IACFS/ME as "an advocacy group" from The New York Times in the Leonard A. Jason article..


 * Why discount the article from the San Francisco Chronicle? A lot of it is on Bell and his opinions. Only the small section that begins with "How is CFS diagnosed?" is adapted from a pamphlet. Why is that biased? Biased in what way? Labeling an author of a publication an activist and then discounting the material based on a label is not a correct way to evaluate material for an article IMO. Ward20 (talk) 06:57, 10 February 2009 (UTC)


 * New York Times is a little more respected independant then a newsletter from activist club and Leonard Jason has own article in New York Times. There is not such thing for Bell, I do not think Bell is notable. I am saying club it is just my word bc it is not just a professional organization. The boards and people in all these clubs are the same people, these organizations make a big echo chamber, they all verify each other and they are made from patient researchers and activist researchers that get money and awards from patient groups w same goals and prejudices. The San Francisco chronicle article is by a activist. Why do you have problem with activist? It is not bad being activist it just means the person is not independant. It is not bad being activist organization like CFIDS or IACFS it just mean the organization opinion on the other organization with the same people and same politics is not independant. This is the same thing I saw at Morgellons article and the "chronic" Lyme Disease people, some doctors and nurses and social workers and lawyers who think they have Morgellons or Lyme Disease start alot of little organizations with newsletters etc and they say we have a professional organization, sorry that is not a professional organization like the big medical organizations!! The CFS people are more respected then them and more reasoned but it is still same concept.


 * OK but Bacchus is saying a good suggestion, may be putting on AfD is a good way improving article. I will let you do that bc Bacchus is right, it is just you and me argue about these minor people, i think it is not so bad when a few minor people get biographies at Wikipedia when that is so important for you. RetroS1mone   talk  17:03, 10 February 2009 (UTC)


 * Ward20 btw i am sorry you will not talk to me when I add on your talk page, it is there i tried and explain why I am against these minor articles, like resumes and lists of publications. I know these people are very important to you but pls try and make the articles for WP:BIO not your opinion of them based from primary sources. Like at Leonard Jason there is not problem for activist researchers being on Wikipedia when they have reliable second sources like New York Times. BC it does not matter for Wikipedia if they are activists or not activists just they are notable. One Times article makes notability better then 50 AAME Organization News articles and when you are using those for notability it kind of supports me. RetroS1mone   talk  17:11, 10 February 2009 (UTC)


 * Sorry it is just too convenient labeling people activists, biased, and prejudiced, not explain why and then dismiss them. That is exactly what I believe is happening. You say the IACFS/ME is not a professional organization. Show me a reliable source that states they aren't. Here are two that say they are a professional organization.. They don't have as many members as big medical organizations since they specialize. Nothing unusual about that.


 * Just to set the record straight, I have not expressed any opinions of anyone based from primary sources. To my knowledge I've only expressed my opinions of wording and sources for the article. And I know what is important to me, you don't. Ward20 (talk) 21:06, 10 February 2009 (UTC)


 * "Sorry it is just too convenient labeling people activists, biased, and prejudiced, not explain why and then dismiss them. That is exactly what I believe is happening." You just hit the nail on the head so accurately that you violated the Planck length. This is exactly what goes on at the CFS related articles. - Tekaphor  ( TALK ) 03:29, 20 February 2009 (UTC)

Discussion of edit
The material is original research and not NPOV: "In The Doctor's Guide to Chronic Fatigue Syndrome, Bell modifies the Karnofsky scale to measure fatigue in CFS and he argues the name "chronic fatigue syndrome" should be replaced by a more serious sounding name like "myalgic encephalomyelitis" that he says "sounds as if it could be fatal."  Bell's modified scale has been used or recommended to document severity of symptoms in chronic fatigue syndrome in government publications and in clinical studies."

The claim, "Bell modifies the Karnofsky scale to measure fatigue in CFS", none of the sources state this. The secondary sources say it is "Bell's CFS (Dis)ability scale" and the article should attribute him as the original wording did. I thought a google search indicated this article used Bell's scale, but I have not been able to replicate it in google or on PubMed.

The claim, "he argues the name "chronic fatigue syndrome" should be replaced by a more serious sounding name like "myalgic encephalomyelitis" that he says "sounds as if it could be fatal." is not what he states in the book, pg. 8. The book states: "In this book I have chosen to use the name "chronic fatigue/immune dysfunction syndrome" or CFIDS, because it combines the most prominent symptom, fatigue, with the presence of a dys-functional immune system. The name is designed to separate the illness from the chronic fatigue caused by the stresses of daily life. However, the name of the illness is not as important as its understanding, and I am equally at home with almost all other names. I like the term "myalgic encephalomyelitis" used in the United Kingdom; it is a little harsh and somewhat technical, but there can be no doubt that it represents a real disease. It sounds as if it could be fatal."

Ward20 (talk) 02:42, 11 February 2009 (UTC)


 * The primary sources, they say it is a modification of Karnofsky scale and thank you that you quote the whole part where it has the quote I used, a summary is what I wrote, Bell wants a new name for CFS like ME that "sounds as if it could be fatal." I revert, when you do not want this accurate stuff in your article, i think we should back from all those primary sources. RetroS1mone   talk  03:38, 12 February 2009 (UTC)


 * Please quote the passage where a cited source says, "it is a modification of Karnofsky scale." I read the sources and saw no such wording. The secondary sources say it is "Bell's CFS (Dis)ability scale" and the article should attribute him as the original wording did or it is not WP:NPOV.


 * The claim "he argues the name "chronic fatigue syndrome" should be replaced by a more serious sounding name like "myalgic encephalomyelitis" is a very strange and POV interpretation of, "In this book I have chosen to use the name "chronic fatigue/immune dysfunction syndrome" or CFIDS, because it combines the most prominent symptom, fatigue, with the presence of a dys-functional immune system. The name is designed to separate the illness from the chronic fatigue caused by the stresses of daily life. However, the name of the illness is not as important as its understanding, and I am equally at home with almost all other names. I like the term "myalgic encephalomyelitis" used in the United Kingdom; it is a little harsh and somewhat technical, but there can be no doubt that it represents a real disease. It sounds as if it could be fatal"


 * Bell never claimed that CFS is caused by a retrovirus. He and the other researchers' results showed there appeared to be an association with an unknown retrovirus when compared to controls. The CDC never duplicated their findings in part because they didn't use the researchers methods to look for the virus.(spread out through many pages unfortunately.)


 * The edits RetroS1mone made here are not accurate to the sources, removed many of his publications from the article, and are not WP:NPOV. I am asking RetroS1mone or produce quotes from sources that support the changes, or to self revert all the edits. Ward20 (talk) 06:01, 12 February 2009 (UTC)


 * Ward20 i do not get it, Bell writes he wants a more serious sounding name and "it sounds as if it could be fatal" that is just what i said in the edits. The primary sources said it is a Karnofsky scale. You can look up and pls look up Karnofsky scale you will see. Osler's web is a conspiracy activist book i would not use that for much stuff. Wikipedia is WP:NOTDIRECTORY it is not for putting all of a persons fourth author publications. What would Leonard A. Jason or Simon Wessely be like when we do that. Pls spend more time to find reliable second sources and not argue about primary research and your interpretation from primary soruces. Thx RetroS1mone   talk  13:44, 12 February 2009 (UTC)


 * The source does not state he wants a more serious sounding name. That's WP:OR, just like, "The primary sources said it is a Karnofsky scale." I asked you to produce quotes from sources that support the changes and you have again ignored my request. Please produce quotes from sources that support the changes. Ward20 (talk) 03:49, 13 February 2009 (UTC)


 * Ward20 you put in the whole quote your self!! This is like Guido where ten reviews say things like the cause of CFS is not known and when i write the etiology of CFS is not known Guido says that is not in the sources. Duh i am just saying it in other words. I guess people that like to just copy stuff do not like it that way?? RetroS1mone   talk  04:01, 13 February 2009 (UTC)


 * Unless I'm missing something (I don't have the book), going by the quote used above, I have to agree with Ward20's criticism. Bell actually chooses "CFIDS" and notes that he likes "ME". Trying to condense the entire quote into something like "he argues the name CFS should be replaced by a more serious sounding name like ME that he says sounds as if it could be fatal" seems distorted. Why isn't "CFIDS" mentioned at all in the Wikipedia article and why such the emphasis on the alleged ME naming advocacy? - Tekaphor  ( TALK ) 05:11, 16 February 2009 (UTC)


 * You can say about his CFIDS thing but the big dispute in world is between CFS and ME, Bells point is, he thinks CFS is not serious enough, it is better have a name like ME "sounds as if it could be fatal" that is his words from the book. RetroS1mone   talk  12:50, 17 February 2009 (UTC)


 * RetroS1mone, Bell does not even mention CFS in the passage quoted from the book. You are taking a quote out of context and making a claim the book said something it didn't and that is original research. Also, the text that you edited that said "Bell modifies the Karnofsky scale" is not in the cited sources so that is original research. Your edit, "described his belief that CFS is caused by a retrovirus" is original research as I discussed above. I asked repeatedly, and am still asking for quotations from the cited sources that show "Bell modifies the Karnofsky scale" and "described his belief that CFS is caused by a retrovirus". You have not supplied them. I have looked and looked through the references and I don't believe the quotes exist.


 * You removed accurate material from reliable sources and edited it into original research. You have also removed many of Bell's works and moved his books to a further reading section below the references section. Please stop this, it is not improving the article and it is misleading the reader. Ward20 (talk) 02:12, 18 February 2009 (UTC)


 * Ward20 your activism i admire, but it does not help Wikipedia, the articles you are supporting with trivia from primary stuff. Wikipedia is not a directory for lower impact papers from low impact journals by may be notable may be not people that are not having significnat coverage in reliable sources. RetroS1mone   talk  06:34, 18 February 2009 (UTC)

Modifies the Karnofsky scale?
Hi. Ward20 contacted me on my talk page a while ago, and I've been watching the page and reading some of the discussion. This particular section seems to have drifted a bit from the original question, which was about a particular edit. I'd like to address that edit. In particular, I have a question: Where does it say that Bell's scale is a modification of the Karnofsky scale? I know I'm entering the discussion late, but I can't figure out which source I look in for that. It might have something to do with the fact that I've never heard of the Karnofsky scale before seeing this article. RetroS1mone mentions a primary source - what is that? Can someone help me with that part? -GTBacchus(talk) 01:32, 19 February 2009 (UTC)
 * All I know is already on the talk page. Ward20 (talk) 20:26, 19 February 2009 (UTC)
 * There's only one mention of Karnofsky on this talk page before this section, and reading this section, it's not clear to me how I'm supposed to verify that fact. I've made an edit that I think stays a bit truer to the source, while retaining what seemed to be the main content of previous edits. I guess we'll see what happens now. -GTBacchus(talk) 23:51, 19 February 2009 (UTC)


 * GTBacchus's new text is an improvement in regards to the Karnofsky scale issue (if it isn't reverted), but I still don't understand the emphasis on ME: "he refers to CFS as 'myalgic encephalomyelitis', a name that he argues distinguishes CFS more clearly from other types of chronic fatigue", whereas in the direct quote from the book (above on this talkpage), it is actually "CFIDS" which Bell describes as distinguished from chronic fatigue. He says he is "equally at home" with other names, and uses ME as an example of one he likes. To him it sounds serious enough to be fatal, but I think it was supiciously POV for RetroS1mone's edit to quote this short fatality sentence as the most important wording of the entire paragraph, especially when it doesn't even say "CFS should be replaced with ME". RetroS1mone had previously reverted my edit (of adding CFIDS) with the summary "go back to what Bell said, when you are not comfortable with what bell says cover up??" Firstly, my edit was using what Bell said, and even used more words from the quote. Secondly, what does the rest of the edit summary even mean? - Tekaphor  ( TALK ) 03:12, 20 February 2009 (UTC)
 * That ME thing was my fault. I just pasted in the wrong text somehow. Thanks for catching it. -GTBacchus(talk) 05:12, 20 February 2009 (UTC)
 * The primary sources Ward20 put in. It says the scale is a modified Karnofsky scale. Karnofsky scale they use to measure distress in cancer, that is where it was original used. Bell uses it and puts his own name on it and Ward20 looked up the three papers that cite Bells not peer review book. Bell and the activists that call CFS ME or CFIDS, they do not like the name CFS bc they have a outdated idea, psychological problems are stupid and only wierd people have them and they are not "organic" so they want a name that sounds fatal or some thing a average person will say, wow i do not know what myelitis is that sounds serious. I understand that bc their is alot of prejudice against affective disorder by people, it is so sad when doctors like Bell do that to, they should know better. RetroS1mone   talk  03:36, 20 February 2009 (UTC)
 * Thanks for clarifying about the primary source. I'm really just trying to track down where these various bits of information are coming from, and I appreciate your help. On that note, where do you get your information that Bell and others "do not like the name CFS"? What source documents that fact? The source we've quoted certainly doesn't say it - Bell makes no normative claims about what the disorder "should" be called; he says rather that he is equally comfortable with most other names. Unless there's something in a reliable source saying he is specifically against the name CFS, I don't see how we can include that. -GTBacchus(talk) 05:12, 20 February 2009 (UTC)

<Out. Actually, for the last few years Bell and others "do not like the name CFS", but not from the POV "psychological problems are stupid and only wierd people have them".

Here is a very good source that talks about it in Bell's and others words. Concerning the talk page: RetroS1mone, here is my fifth request, what specific wording in what specific cited source does it say "Bell's scale is a modified Karnofsky scale." RetroS1mone also states Bell put his name on it. He didn't, his book calls it the CFIDS disabilty scale, secondary sources call it Bell's scale. RetroS1mone further makes a rather dubious smearing statement about Bell. I rather think the statement should be removed from the talk page as a BLP violation.

I'm sorry, I wasn't thinking. If you click on link [43] above it will take you to The Doctor's Guide to Chronic Fatigue Syndrome at Amazon Books. By hovering the mouse pointer over the picture of the book jacket you will get a search box which will tell you what search phrases are on what page. Amazon will allow a limited number of page views from that menu (you can do this in some Google book listings also). If you search for "CFIDS disability scale", its discussion starts on page 122 also showing the Karnofsky scale and other scales through page 126. The Karnofsky scale has a 0-100 scale like Bell's and others (see the Lansky score under Karnofsky scale). Bell does say his scale is similar to other instruments but modified with a greater range in the area of disability seen in CFIDS. (I just realized that at the bottom of page 122 it says, "This disability rating scale has been developed in our office...") But, there is no mention of him modifying the Karnofsky scale. I read all the other sources and did not find any mention of Bell modifying the Karnofsky scale.

As to the claim arguing the name. Using the Amazon search function for 'myalgic encephalomyelitis' in Bell's book, the narrative on names is on pages 7-8. The discussion is just a musing by Bell of various names, and why he uses the name CFIDS in his book. His 1995 book does not argue he wants any particular name. IMO this book is important to Bell's notability in two ways: One, it was an important doctors guide to CFS when there were few around. I haven't found a second source explaining this yet. Two, the scale is recommended and attributed to Bell in second sources, including the CDC.

RetroS1mone doesn't think Bell is notable enough to have an article in Wikipedia. and has proposed the article be deleted. According to Notability (academics) A person is notable if, "The person's research has made significant impact in their scholarly discipline, broadly construed, as demonstrated by independent reliable sources.", and notability, "can also be satisfied if the person has pioneered or developed a significant new concept, technique or idea, made a significant discovery or solved a major problem in their academic discipline. In this case it is necessary to explicitly demonstrate, by a substantial number of references to academic publications of researchers other than the person in question, that this contribution is indeed widely considered to be significant and is widely attributed to the person in question." By diminishing Bell's scale, it diminishes his notability. The original dispute started when RetroS1mone said material about Bell's CFS Ability scale was original research. Then the statement in the RFC was edited by RetroS1mone to argue about the name. This appears to be a red herring, along with saying Bell modified the Karnofsky scale. This seems to be very tendentious editing by RetroS1mone. Ward20 (talk) 06:04, 20 February 2009 (UTC)


 * Hi GTBacchus, no worries about the ME mistake. I agree that Bell doesn't seem to comment on CFS in that quote. I agree with Ward20 that RetroS1mone's edits were original research and POV, and that Bell seems to merely be musing. While there has since been some concession, there's still staunch emphasis on how Bell thinks ME-itis "sounds fatal", over more relevant statements on the same issue (ie "I like the term "myalgic encephalomyelitis" used in the United Kingdom; it is a little harsh and somewhat technical, but there can be no doubt that it represents a real disease.") If anything suggests Bell wants CFS to be replaced with "ME-opathy/CFS" to provide a universally acceptable and respectable name. It also mentions that Bell discovered CFS wasn't directly caused by EBV ("While EBV can still be a trigger, the illness has evolved into a post-infectious phenomenon..."), if MEDRS can be found for that, Bell's notability would be unquestionable.


 * I think RetroS1mone is just trying to discredit Bell by associating him with (alleged) ME-itis naming advocacy and (supposed) unscientific ideas. Ah, the old "anti-psychological activist" stereotype again. So Bell just can't hack the "harsh reality" of psychological factors in CFS, right RetroS1mone? Never mind that in his e-book he describes a case of CFS where fear-avoidance was a factor in delaying recovery. Oh yeah, he never mentions "ME" once in the whole e-book either.


 * In the Wikipedia article, there is an unsourced statement about how most doctors don't accept CFIDS because there's no evidence of immune dysfunction. Also, is there a better source to the claim that Bell believes CFS is caused by retroviruses? As for the text "The CDC eventually wrote a paper dismissing Bell's claims, that are still unproven.", again, is there anything more than a reference to a TV program? (does this program even support what the text claims?) Perhaps the text is referring to this CDC article from 1992? Notice that Bell seems to have participated in the study.


 * _ Tekaphor ( TALK ) 12:05, 20 February 2009 (UTC)


 * GTBacchus, thank you, that works for me. I hope it works for all. Ward20 (talk) 17:18, 20 February 2009 (UTC)


 * Tekaphor, you nailed the description of the CDC study that dismissed the three reserchers investigation. I just found the newsweek article that also describes the retroviral investigation. I won't link to it, but FYI a google search for the TV program can find an accurate but probably not a WP:RS source for the segment transcript. Oslers Web by Hillery Johnson has the most detailed description of the retroviral investigation but it is spread over many pages. I can extract quotations from that source sometime if necessary. Ward20 (talk) 17:41, 20 February 2009 (UTC)


 * The New York Times Monday, Published: September 5, 1990 Virus Found That May Be Linked To a Debilitating Fatigue Ailment Ward20 (talk) 07:25, 23 February 2009 (UTC)
 * Read the reliable sources do not rely up on sources like Oslers Web. RetroS1mone   talk  04:59, 23 February 2009 (UTC)
 * I still can't tell which source is verifying this idea that Bell's scale is "based on" Karnofsky's. If this is verified in some source, naming it shouldn't be difficult, right? -GTBacchus(talk) 05:56, 23 February 2009 (UTC)


 * Bacchus that is great Ward20 recruited you and Tekaphor bc we were the only two people interested on this article, but I said before it is one from the primary sources Ward20 put at end of paragraph. I do not remember which one and this is not so important I want to read these again like I did a month ago when Ward20 did the original research from primary source. When you read them you can find. When I have time I look them up for you. Is it OK? Thx, RetroS1mone   talk  03:58, 24 February 2009 (UTC)

IACFS/ME advocacy
What does it advocate? Name history AACFS---> IACFS---> IACFS/ME

Homepage Mission Statement. Sponsors International IACFS/ME professional Research and Clinical Conferences. Appropriate for Readers of: JAMA, Arch Intern Med, Arch Neurol, Arch Pediatr Adolesc Med. AACFS, an international scientific organization that promotes, stimulates, and coordinates the exchange of ideas related to chronic fatigue syndrome and fibromyalgia research, patient care, and treatment. Professional Societies. Cleveland Clinic Department of Rheumatic and Immunologic Diseases, "a variety of current sources of reliable information. Many of these can also be found on the internet and include the American Association for Chronic Fatigue Syndrome (www.aacfs.org) which links to a variety of other reliable sources at the National Institutes of Health, the Centers for Disease Control and Prevention and others." "International Association for Chronic Fatigue Syndrome (IACFS) This website address provides a link to the International Association for Chronic Fatigue Syndrome, a private organization of scientists and clinicians involved with CFS" "Specifically, only a single modestly sized professional organization (about 300 members), the International Association for Chronic Fatigue Syndrome, represents the interests of CFS researchers and clinicians worldwide."

Ward20 (talk) 09:42, 23 February 2009 (UTC)


 * Ward20 IACFS/ME is some activist researchers, alot from them say they have CFS themself, they do not like psychological explanation may be they think psychology is for "crazy people" and they say it must be a virus or blood volume or some thing else and they have a conference every year and Byron Hyde has like three or four posters and other people that are self publishing people. And they had a journal together where they write their papers and "review" each other and come on. That is activism, ok you find a paper by people in organization and that is proof they are professional?? I said it is great you have activists like this and there is people that question the main-stream but it is not medrs for Wikipedia and we do not pls pretend they are so notable. OK? RetroS1mone   talk  04:03, 24 February 2009 (UTC)
 * RetroS1mone, I hope you aren't offended by a little unsolicited advice. Attempting to convince Ward20 that he is pursuing activism and that he should stop is very unlikely to be successful, in any way. It's a very, very good bet that Ward20 believes that he (or she) is editing in line with our policy on neutrality, just as you are certainly editing in a way that seems entirely neutral to you. If you believe that the topic is not notable, then your best bet is to stop trying to convince Ward20 of anything, and nominate the article for deletion to get the wider community's input on whether or not the topic is notable. Sitting on this talk page and arguing about it with one other person is not going to lead anywhere useful. I speak from experience. The trick on Wikipedia is not to win arguments; it's to bring a larger audience. At which point... it's best not to be the guy seen disparaging the other guy's motives. Crowds hate that here; it'll turn them against you. Be careful. -GTBacchus(talk) 04:35, 24 February 2009 (UTC)

Edits 19 April 2009
Added back WP:V material. Added back IACFS/ME material. Google Scholar search for the various names of the organization. You can see notability in the dozens and dozens of research articles presented at their scientific conferences which were later published in medical journals and books. There are also many attributions of their membership. Added back his major publications since there appears to be no guidelines not to, and other bios have listed them. IE: Sigmund Freud Ward20 (talk) 07:28, 19 April 2009 (UTC)


 * OK when David Sheffield Bell is so notable as Sigmund Freud pls put every paper he signed on Wikipedia, I have no problem. Problem is, you are writing about a person w/ not alot of second sources, Wiki is not a resume posting web site. RetroS1mone   talk  20:49, 8 June 2009 (UTC)


 * So we treat bios differently according to how notable they are? Who gets to decide how to treat one bio verses another according to these different standards of notability? RetroS1mone, I don't understand the logic of that at all. Just because Bell's publications are listed does not make it a resume. Your edits keep deleting a lot of WP:V information from primary and secondary sources. Deleting his educational material (for example) because it was published on his website and the IACFS/ME organization he belongs does not conform to WP:V policy. WP:SELFPUB "Self-published or questionable sources may be used as sources of information about themselves, especially in articles about themselves," Ward20 (talk) 04:28, 11 June 2009 (UTC)
 * Questions about self published, primary and secondary sources for Bell material posted to Wikipedia talk:Verifiability Ward20 (talk) 05:01, 11 June 2009 (UTC)

Edit 06 June 2009
Added back WP:V material. Added back IACFS/ME material. Google Scholar search for the various names of the organization. You can see notability in the dozens and dozens of research articles presented at their scientific conferences which were later published in medical journals and books. There are also many attributions of their membership. Added back his major publications since there appears to be no guidelines not to, and other bios have listed them. IE: Sigmund Freud Ward20 (talk) 07:14, 6 June 2009 (UTC)


 * Ward20 do you have relationship with David Sheffield Bell? RetroS1mone   talk  16:54, 6 June 2009 (UTC)


 * Copy your self from April and revert all edits w/o real discussion, you accuse me of that and you do it to. Why?? RetroS1mone   talk  16:56, 6 June 2009 (UTC)
 * If you read the first paragraph of this section RetroS1mone you will see I discussed them. Ward20 (talk) 02:33, 7 June 2009 (UTC)
 * Retrosimone, you made huge changes to the article with no reason given on the talk page on June 5th and June 6th. I did give my reasons for my last two large changes to this article April 19 and June 6th on the talk page. Yet you me accuse above and in your edit summary of not discussing on the talk page. I did discuss you didn't and you have the gall to say the opposite. I already said I have no COI. How many times do you want me to say it 100, 1000, 106 times? I am getting very mad RetroS1mone. Ward20 (talk) 03:23, 7 June 2009 (UTC)


 * Fix inaccuracies and reinstate verifiable information from reliable sources. Fix reference as RetroS1mone suggested Ward20 (talk) 07:26, 9 June 2009 (UTC)


 * 5-09-2009 added material and add RS for education section in article. Ward20 (talk) 18:13, 9 June 2009 (UTC)


 * Personal web sites primary sources, OR from primary sources, resume writing, not for Wikipedia. It is warning to me, when editor has personal sources, organization sources from subject organization, obscure sources "a characteristic lack of connection to anything the general reader might want to consult as a reference" and never a one thing, 3rd source it is just about the subject. Why?? RetroS1mone   talk  23:22, 9 June 2009 (UTC)

Need more editors to weigh in on the large scale differences between two edits.. Ward20 (talk) 02:45, 7 June 2009 (UTC)


 * I'm still familiarizing myself with all the rules, since I generally only make grammatical and similar such edits, but as I understand it, in a biography of a living person, self-published sources by the subject are quite acceptable, so I think articles of note that he has written should all be considered reasonable to include on that basis.
 * As documented here, the Journal of Chronic Fatigue Syndrome is probably not the best source. I would suggest trying to find other sources.  For academic achievements, I wouldn't expect this to be too difficult.
 * A statement like "various publications have used or proposed Bell's scale" really shouldn't be that hard to prove. If multiple publications that use it can be cited, then the statement is correct and I see no reason not to use it, provided the publications mentioned aren't self-pubs and Bell wasn't directly involved with them.
 * Similarly, it's not hard to figure out whether a book "includes" or "describes" Bell's scale, provided the book is available online. Heck, a quick search for "Bell's Fatigue Scale" produced this result, amongst others, which would seem to confirm that the book "includes" the scale (though obviously the website itself is nothing close to an RS).
 * There are a number of fixes in that diff that would be considered non-controversial such as grammar and punctuation improvements. Can I suggest making the totally non-controversial edits separately (much as I did on Malcolm Hooper Simon Wessely's article), then take the rest of the concerns one-by-one (or section-by-section, at least) and provide quick citations of the referenced material on the talk page so that it's easy to see what material each statement is based on and why it should or should not be included.  It will be easier for other editors to "digest" the information that way.
 * --Rob (talk) 22:09, 11 June 2009 (UTC)


 * Yes Rob great idea we should make edits separate then the conteroversial things can be reverted and not change the minor. The problem on this article, WP:SELFPUB point #5, the article should not be mostly from that kind sources, this article is from personal web sites and advocacy organization web sites and primary sources w/ alot of OR. I do not find reliable third sources about David Sheffield Bell. "multiple publications site" that is original research, and it is strange for me, when a person is notable you do not need that original research.
 * This article was made by a web master for patient activist web site. It has notability and source tag since January and FEb. Alot of times, people w/ MUS start networks and send people to "special" doctors, like "lyme literate doctors" for "chronic lyme disease" so is this person notable, is it just a promotion by COI editor User:Lassesen? RetroS1mone   talk  22:27, 11 June 2009 (UTC)


 * If the body of the article is mostly from self-pub sources, then yes, that is a problem. In terms of listing them in his publications, as long as there aren't too many, I think that's fine, since they're not really contributing to the main body of information in the article.  The number I see there now looks fine to me, though maybe a few more in the "Articles" would be useful, but that's entirely my own opinion.  I don't think Wikipedia has any sort of guideline on that.  And of course, which publications deserve mention over others is another question that's up for debate.


 * As for the person that created the article, is your assertion about who he is stated anywhere on the Wiki? I certainly don't see it on his User page (which is blank) or his Talk page; please be careful that you're not outing him in any way.  (That's not an accusation of any kind, I'm just saying to make sure that it's been said somewhere.)  Also, I don't believe you can establish COI here, unless you base it on the information that you removed from his talk page yourself (which I won't link to for the very reason that you gave when you removed it)...even there, it might be a little tenuous, depending on the level of involvement.


 * But putting that aside for a moment, who created the article is irrelevant if the content is well-sourced, relatively unbiased, and notable. As you say, that needs to be established clearly based on the requirements at WP:NOTABLE.  The sources seem to be more than adequate (assuming they're RS), and since I don't know much about him, I can't really judge the "unbiased" section.  As for notability, a quick glance at the web finds 660 hits on "David Sheffield Bell" (I didn't bother to search for variations that may have missed his middle name), including a variety of websites, a listing of one of his books at Barnes & Noble, and several references to him by other professionals (in other words, not just the ones by his publisher) that refer to him as something along the lines of "leading CFIDS researcher", "CFS expert" and similar such terms.  So that, to me, would seem to satisfy the criteria for notability, though of course a more formal examination than a quick web search would be required to truly establish it.


 * Anyway, that's my input for what it's worth. --Rob (talk) 05:57, 12 June 2009 (UTC)


 * Yes the user said it themself, when it was not that person the name was a violation of Wiki names policy. Thx for the warning tho. RetroS1mone   talk  04:29, 13 June 2009 (UTC)


 * Oh, and coming back to the JCFS point for a minute, I remembered there being a longer discussion on the topic and I was correct. It can be found here.  No firm decision was ever reached there, either, but I would agree with the general idea that WLU and an anonymous editor indicated towards the end of the discussion:  use with caution - use better sources if at all possible.  The very last comment by Jagra may also have some bearing. --Rob (talk) 06:07, 12 June 2009 (UTC)


 * OK, it is may be not where to discuss RS but "JCFS" is discussed three?? or four?? times at RSN and other, the uninvolved editors said it is not a reliable source, it is from MEDRS, it is not from Pub Med. Some editors were "forum shopping," people put the same question on RSN again bc they hope they get a different answer. May be people can use that source when they want say what a "pro organic" researcher believes, for MEDRS it is not RS RetroS1mone   talk  04:35, 13 June 2009 (UTC)


 * The first time was balanced...one person spoke for (briefly), one against. Most of the other times except for the really long discussion just got redirected to one of those two discussions.  At least that's all I found.  So in the second one, I think there were a lot of good points made that the JCFS is not a good source to use.  But while they were points, they weren't proof.  Still, as I said, I would tend to agree that JCFS should be avoided if possible, and if you do use it, only use it for relatively non-controversial stuff: biographies, maybe a broad overview of something, etc.  If it's likely to be controversial, I wouldn't use JCFS as the only source.  As for forum shopping, it's possible that it was, but with the first one being one-for, one-against, I think it was bound to come up again. --Rob (talk) 05:50, 13 June 2009 (UTC)


 * I think it's obvious that Ward20's preferred version is preferable to RetroS1mone's preferred version. I don't see any of Ward20's additions that are inappropriate in content or tone, and it's clearly better sourced. It should be improved upon, not reverted. – Quadell (talk) 23:29, 12 June 2009 (UTC)


 * Thank you Quadell for finally an outside judgment. I submit to your ruling totally except two things, i do not agree that every paper a person is a coauthor should be on Wiki, we do not have that even for non-dispute notable people like Sigmund Freud, all of the publications is on a resume. And my opinion it is OR or close when you say, here is what a person published and here are the sources that cite it, that is very strange to me and for non-dispute notable academices, i did never observe it. I do not think Bell is a notable academic WP:PROF but the Newsweek source is enough for notable person, two other independent sources say his name once only but, i guess one source, is enough. RetroS1mone   talk  04:29, 13 June 2009 (UTC)

Touching It Up
I'm taking a stab at touching up the article. For now, as I suggested in the thread above, I'm trying to make my edits non-controversial. Some of the wording has certainly been changed, but only to bring it closer to the sources being cited. Only information which is redundant will be removed, and no significant new information will be inserted. Some information may significantly be re-ordered, however, in order to make it flow better.

If the consensus is that information is currently missing, is incorrect, or that my edits have substantively altered the meaning of any portion of the article, please bring it up here so that we can work together to resolve the issue.

Only the initial paragraph really needed work in my opinion. I was taking it one paragraph at a time and saving between each, in case any of the edits was deemed controversial, but as it turned out, the other paragraphs only needed a couple of commas.

I do believe the term "Selected" is appropriate when it comes to publications, as we don't want to make it appear that these are his only publications if they're not. For now, I've added the word to the entire publications section. If we're certain we've listed all his books, then it should be moved down to just the "Articles" section. --Rob (talk) 07:33, 12 June 2009 (UTC)


 * I have attempted to reinstate the sourced information by Ward20 into the article, without undoing any of the positive recent contributions discussed here. I apologized if I missed anything. – Quadell (talk) 23:36, 12 June 2009 (UTC)

MOSBIO and Simon Wessely
I think, the article should be a biography like on WP:MOSBIO. The lead should say name, nationality, why he is significant. The education and unconfirm faculty position can be in a section. Ward20 compared sources on this article and Simon Wessely, great job Ward20 that is alot alot of work!! I agree on, Simon Wessely is more like this article should be. I think, the big differences are, Wessely's website w/ biographicall detail is a confirmed official university website and the medical organizations he is with are recognized medical organizations. IACFS/ME is great but it is a advocacy group, and it has "faculty" but they are not academic faculty, it is not accredited institution.

Only main secondary source is Newsweek article, it is not about Bell but it has alot about him and it is accessed, the article should get built by the Newsweek source. The TV program is paid access has any body seen it beyond Ward20? BC that source is possible but Wiki is mostly for text sources bc it is harder to verify other medias. In Newsweek, Bell is known for two things treating the outbreak at Lyndonville and he was co author on a paper about retroviral hypothesis.

Does an editor have confirmation about the HHS panel from second source, was Bell on it, how long, is the panel notable?? RetroS1mone  talk  12:04, 13 June 2009 (UTC)


 * I would agree that we should re-format this to follow WP:MOSBIO standards, which would also have the benefit of highlighting his notability within the opening paragraph. In terms of his education, per WP:SELFPUB primary sources are okay in this instance, as long as there's no reason to doubt their authenticity (which I don't believe there is).  Similarly, citing that he was on the board of IACFS/ME when the source is one of their own newsletters, is also reasonable under SELFPUB rules.  I think where that sentence is now is an appropriate place for it.  Similarly, on the HHS, it's a government department which is entirely independent of Bell (i.e., he doesn't run the department), so I don't believe a secondary source is required.


 * I'm still fairly new to the various content requirements, though, so if my understanding of any of the above is incorrect, please let me know. --Rob (talk) 18:43, 13 June 2009 (UTC)


 * I am still working on the analysis of sources between Bell and Wessely . I would like to also analyze a featured article for comparison. Ward20 (talk) 23:36, 14 June 2009 (UTC)

Fake COI accusations etc
I removed the questionable "COI" tag and reverted non-consensus changes which were done without discussion. Please refrain from repeating baseless accusations which have already been refuted (see Ward20 on talkpage 07th June 2009). RetroS1mone, your attempt to have this page deleted has failed twice. Please move on. - Tekaphor  ( TALK ) 09:50, 5 May 2010 (UTC)


 * The responding to honest COI question was refuse to answer. i take out more trivial things from a vanity article, Wikipedia is not resume posting. RetroS1mone   talk  06:31, 6 May 2010 (UTC)


 * Um, no. It was answered nearly a year ago and again recently elsewhere. My use of the word "refused" in the edit summary was a typo, I meant "refuted", and I used that word above on this talkpage. But to reiterate, your continued accusations of "COI" have been refuted here and elsewhere on more than one occasion. Yet you just put the COI tag back in again, what's the deal 'man? What's your "COI" issue with this person? - Tekaphor  ( TALK ) 01:56, 7 May 2010 (UTC)

Dead Link
The External link to the lyndonville news website doesn't take me there, but to a "you are not authorised to view this page" page. I propose to remove this link within the next few days, unless somebody has reasonable objections. --Roxy the dog (bark) 11:58, 12 September 2013 (UTC)

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