Talk:Dementia caregiving

Wiki Education Foundation-supported course assignment
This article was the subject of a Wiki Education Foundation-supported course assignment, between 27 January 2020 and 22 May 2020. Further details are available on the course page. Student editor(s): Hdiaz002.

Above undated message substituted from Template:Dashboard.wikiedu.org assignment by PrimeBOT (talk) 18:40, 17 January 2022 (UTC)

Wiki Education Foundation-supported course assignment
This article was the subject of a Wiki Education Foundation-supported course assignment, between 14 September 2020 and 17 December 2020. Further details are available on the course page. Student editor(s): Sarah3collins.

Above undated message substituted from Template:Dashboard.wikiedu.org assignment by PrimeBOT (talk) 18:40, 17 January 2022 (UTC)

Wiki Education Foundation-supported course assignment
This article is or was the subject of a Wiki Education Foundation-supported course assignment. Further details are available on the course page. Student editor(s): Rodeh777.

Above undated message substituted from Template:Dashboard.wikiedu.org assignment by PrimeBOT (talk) 16:48, 16 January 2022 (UTC)

Images
Along with the other comments I also agree that this article might be a little outdated. There could also be more information given in some sections. I believe that there should be better images. Some that relate to the sections or something that will catch the reader's eye. This is a great article but just needs a little revamping.Aileenacosta1 (talk) 21:51, 9 May 2023 (UTC)

Caregivers
Is it only me that thinks the article needs more on the caregivers, respite care, etc.? It says 24 million afflicted, but we all know that the family members charged with giving care often suffer more than the patient...LeadSongDog (talk) 22:15, 16 February 2008 (UTC)


 * I think an equivalent article to Sociological and cultural aspects of autism is needed. It could link to the 'AD in the Media' page, and could go some more into caregiving too. As an example, thousands of elderly people marched in the UK last year over Donepezil, and the general feeling they are being ignored. The Autism FA actually has around 10 direct sub-articles, btw (though some are buried in the text).


 * Another specific sub-article like Caregiving and Alzheimers might be needed. When not specifically drug-related, it's outside of pubmed of course - but lots of stuff to quote is certainly out there. It's one of those areas that both is and isn't 'original research', as the final result will be fully weighted and credibly cited etc. A benefit is that it can be linked to at top, for people who are looking just for this.


 * The main AD article could mention a few more of these factors - for instance, some families choose not to tell the sufferer - a big decision: it can make for a much happier time, but is it apt, ethical, and fair? Doctors etc, when informed of this, keep up the 'secret'.


 * I think an equivalent to Autism therapies is needed too (therapies, tracking, dogs etc). Two other sub-articles should really cover all the speculation of causes, and the 'alternative' treatments too (which would be useful as so much is out there, and doctors give conflicting advice). AD is no small subject, and all these articles will occur eventually, I'm sure (as they have with Autism, and, in general, everything else).


 * The Autism article isn't great on caregiving either, despite being 'FA' - I have a friend who has brought up a son with autism, and she would just laugh - she and her son did all the work. At 81 she is still contacted for her knowledge. Caring->knowledge->skills/ideas->treatment. --Matt Lewis (talk) 03:42, 17 February 2008 (UTC)


 * Respite care has some good stuff, but is barely start-class if that. Rather than Caregiving and Alzheimers a more general Caregiving and dementia article might be better for now.LeadSongDog (talk) 05:39, 18 February 2008 (UTC)


 * The Harris poll along with the Alzheimer's Foundation has done a few surveys on Caregiving that might be good sources for caregiver concerns, needs, etc. Mary Mittleman has done some work on caregiver strategies to keep folks at home.  --Chrispounds (talk) 14:52, 18 February 2008 (UTC)


 * Just tried a Google scholar query on "dementia caregiving" OR "dementia caregiver" and got 2080 hits! Something tells me this is an overdue article.LeadSongDog (talk) 16:21, 18 February 2008 (UTC)

Assessment
Based on my quick look at the article, it needs an explanation of what makes caring for a person with dementia significantly different from caring for a person with, say, cancer or quadriplegia or severe mental retardation. Otherwise, you could make this article be a subsection of caregiver. WhatamIdoing (talk) 22:25, 18 February 2008 (UTC)

Other sources
I CAN Survey I CAN 2 Survey

Costs from MetLife --Chrispounds (talk) 15:00, 26 February 2008 (UTC)

Original research
I've removed the OR tag OrangeMike added 18 February 2008, as I think it's now addressed. If there are any issues still remaining, please re-add, preferably tagging the suspect section.LeadSongDog (talk) 02:37, 25 April 2008 (UTC)

Suicide
Certainly there must be early Alzheimer's patients that choose suicide rather than present an ever increasing burden on their loved ones. Wikipedia should have a paragraph about it somewhere. Jidanni (talk) 05:11, 30 November 2008 (UTC)
 * If you want to do some research on this, Google-scholaring for "Alzheimer's suicide" shows several good sources. Looie496 (talk) 17:53, 30 November 2008 (UTC)

WP:NURSE priority check
I have rated this article as 'low' importance according to WikiProject_Nursing/Assessment. If you disagree, please leave a note here so we can discuss it. Cheers, Basie (talk) 14:16, 22 January 2009 (UTC)

Expansion of scope / article title
I believe this article could be expanded to cover wider care issues, as the material is readily applicable to more disorders e.g. Huntington's Disease with a little tweaking, so I propose renaming the article 'Caregiving and degenerative conditions' or similar. L&there4;V 00:33, 1 April 2009 (UTC)

Copyright concern
Concerns in this edit


 * We state "The evidence for the incorporation of good visual access on the broad, unit level scale is not strong but the dramatic effect of making an important amenity, the toilet, easily seen provides good supporting evidence for the concept."

Doc James (talk · contribs · email) (if I write on your page reply on mine) 23:32, 8 February 2013 (UTC)
 * They state "The evidence for the incorporation of good visual access on the unit-level scale is not strong (Elmstahl et al., 1997; Passini et al., 2000) but the dramatic effect of making an important amenity – the toilet – easily seen provides good supporting evidence for the concept (Namazi and Johnson, 1991a)."
 * We state"While there is evidence supporting the proposition that small size is associated with a variety of positive outcomes for people with dementia it is impossible to quantify the contribution that the size of the unit makes in comparison with the other environmental factors that are commonly associated with a purposely designed, small unit (e.g. homelikeness, safety and familiarity)."
 * They state "While there is evidence supporting the proposition that small size – i.e. a small number of residents – is associated with a variety of positive outcomes for people with dementia (Annerstedt, 1993; Sloane et al., 1998; Reimer et al., 2004), it is impossible to quantify the contribution that the size of the unit makes in comparison with the other environmental factors that are commonly associated with a purposely designed, small unit, e.g. home likeness, safety and familiarity (Reimer et al., 2004"

Moved here from article
This paragraph states that senteces were based on a small study. Moreover citation is from the NY times and not even the true primary article. Also I am not really sure on how relevant it is. Moved here so it is not lost in the history of the article but to re-add it a secondary source and some refactoring of the content would be needed

Paragraph: ''A small recent study in the US concluded that patients whose caregivers had a realistic understanding of the prognosis and clinical complications of late dementia were less likely to receive aggressive treatment near the end of life. ''

--Garrondo (talk) 12:57, 9 February 2013 (UTC)

Also the full section of filmography is completely unsourced, does not state why those specific films are actually relevant to the article, and most probably some are not even notable since do not have a wiki article by themselves. In general I believe it adds very little to the article. Moved here in case anybody may try to improve it.

Filmography

 * 2011 : Before We Forget by Jeremy Boo and Lee Xian Jie
 * 2010 : Blank (L'absence) by Cyril de Gasperis
 * 2009 : I Remember Better When I Paint by Eric Ellena and Berna Huebner
 * 2007 : Away from Her by Sarah Polley
 * 2004 : The Notebook by Nick Cassavetes
 * 2001 : Iris by Richard Eyre
 * 2001 : A Song for Martin (En sang for Martin) by Bille August

--Garrondo (talk) 13:51, 9 February 2013 (UTC)

External links modified
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 * Added archive https://web.archive.org/web/20080625071754/http://www.metlife.com/WPSAssets/14050063731156260663V1FAlzheimerCaregivingExperience.pdf to http://www.metlife.com/WPSAssets/14050063731156260663V1FAlzheimerCaregivingExperience.pdf

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Adding in the Nursing Role
I am a student and will be working on editing this page for one of my nursing resarch classes. I would like to add to this article what the nursing role is in taking care of patients with dementia. I would like to discuss what barriers are presented in this population and how that affects care and also how nurses and other health care professionals can better care for these individuals.

References I would like to use:

Brorson, H., Plymoth, H., Örmon, K., & Bolmsjö, I. (2014). Pain relief at the end of life: Nurses’ experiences regarding end-of-life pain relief in patients with dementia. Pain Management Nursing, 15, 315-323. doi:10.1016/j.pmn.2012.10.005

Dowding, D., Lichtner, V., Allcock, N., Briggs, M., James, K., Keady, J., & ... José Closs, S. (2016). Using sense-making theory to aid understanding of the recognition, assessment and management of pain in patients with dementia in acute hospital settings. International Journal of Nursing Studies, 53(1),152-162. doi:10.1016/j.ijnurstu.2015.08.009

Rantala, M., Kankkunen, P., Kvist, T., & Hartikainen, S. (2014). Barriers to postoperative pain management in hip fracture patients with dementia as evaluated by nursing staff. Pain Management Nursing, 15, 208-219. doi:10.1016/j.pmn.2012.08.007

Tarter, R., Demiris, G., Pike, K., Washington, K., & Oliver, D. P. (2016). Pain in hospice patients with dementia. American Journal of Alzheimer's Disease & Other Dementias, 31, 524-529. doi:10.1177/1533317516653825

Rodeh777 (talk) 21:23, 31 October 2017 (UTC)

Expanding
I am looking at expanding the sections of Respite and day care, Communicating and Environmental design. I have found additional Journal articles to add to the information already provided. Hopefully this adds a little more clarity and depth to the article. Sarah3collins (talk) 21:54, 12 December 2020 (UTC)

I think by adding some pictures would help more readers understand what they are reading about. — Preceding unsigned comment added by Brennam29 (talk • contribs) 15:23, 3 October 2022 (UTC)

Wiki Education assignment: Technical and Scientific Communication
— Assignment last updated by Vdanquah (talk) 15:59, 21 September 2022 (UTC)

I am a student and I am adding information for my class. I added information under Environmental Designs, Communicating, Nursing, and Family caregivers on the importance of nurses in each of these categories and how nurses are an important role in dementia patients lives. — Preceding unsigned comment added by Ahoover11 (talk • contribs) 14:29, 3 October 2022 (UTC)