Talk:Dysautonomia/Archive 1

I
-This article would greatly benefit from the addition of material sourced from actual scholarly sources (Low, Grubb, Robertson, Mathias, etc.); while the layperson may benefit from sources like DINET, they aren't primary sources and are likely less than what will be ultimately necessary to get a *medical* article on Wikipedia up to snuff. It's also of note that this article seems to conflate POTS with dysautonomia, or at least lead the layperson to easily do so; that seems more to be the bias of the sources used to create this page thus far than reflective of the subject matter itself. POTS is a relatively small subject within the larger topic of autonomic dysfunction, as can be seen in any of the major textbooks on dysautonomia (even if you allow for the fact that POTS is probably still getting short shrift due to its relative "youth" in the field). Cr1632 (talk) 03:27, 27 August 2011 (UTC)

"+" I would like to request to add a link http://www.mc.vanderbilt.edu/gcrc/adc to this page. Vanderbilt conducts research studies concerning dysautonomia and the website has much resources for patients both about the dysautonomia and the research if they're interested. Thank you so much, would greatly appreciate you adding this link. Sher06 19:38, 29 March 2007 (UTC)

- I would like to draw to people's attention that the prognosis of the disease is not consistent between Japanese and English articles (which link to each other). The Japanese article maintains that during the disease "Major symptoms do not appear" and mainly refers to postural hypotension, and the possibility of death is not considered at all. Other areas (mainly the symptoms section) of the Japanese article seem to resemble the symptoms section of the English CFS (chronic fatigue syndrome) article more closely. While the Japanese 自律神経失調症 literally translates into dysutomonia, something different is being described. I think the link between the Japanese and English versions of these articles should be removed, preferably after a native Japanese speaker has come to the same conclusion. --ChrisDBull 00:04, 6 July 2007 (UTC)
 * Dysautonomia is a well recognized factor in CFS, so it might be possible to bring the content of both language versions closer together. Regards, Guido den Broeder (talk) 00:57, 16 December 2007 (UTC)

Cruft
This article is strongly biased in favour of the slightly more tenuous forms of dysautonomia, and builds a strawman argument about neurasthenia. Most of the sources are weak and non-MEDRS. Vital concepts like familial dysautonomia (Riley-Day syndrome) are relegated to "see also". It would be good to have a framework built on an actual useful sources. I have 10.1055/s-2008-1062263 which seems good. JFW &#124; T@lk  10:57, 18 December 2011 (UTC)


 * I found it quite disturbing that the author claims that people with EDS and Marfans syndrome should expect a chronic progressive course with dysautonomia often relating to death from respiratory disease etc. The article he / she quotes does not say any such thing. [10]. Sensationalist, inaccurate and inadequately sourced and sparse coverage of a large area of knowledge. Very amateurish and unscientific coverage.  — Preceding unsigned comment added by 122.110.22.80 (talk) 13:27, 22 February 2012 (UTC)

However patients with Ehlers-Danlos Syndrome, Marfan Syndrome or Parkinson's disease have a chronic, progressive, generalized form of dysautonomia in the setting of central nervous system degeneration, leading to a generally poor long-term prognosis. Patients can die from pneumonia, acute respiratory failure, or sudden cardiopulmonary arrest.


 * I have temporarily removed the content you were concerned about. I didn't write it so I won't need to apologise, but I agree that the content is not supported by the source. JFW &#124; T@lk  20:20, 22 February 2012 (UTC)


 * I was diagnosed with dysautonomia by one consultant neurologist and a prof with a specific interest in the autonomic nervous system. I have "florid Autonomic failure" but you can call expert opinion cruft if you like Jacob. — Preceding unsigned comment added by 2.97.103.154 (talk) 17:23, 21 April 2013 (UTC)


 * You are strawmanning me. I did not say that your diagnosis of dysautonomia was "cruft", just that this article presented a highly skewed view of the condition. Does your esteemed expert also have any thoughts as to the underlying cause of the dysautonomia? Because most forms have an underlying cause. JFW &#124; T@lk  21:54, 21 April 2013 (UTC)

Useless redirect
I was redirected here when following a wikilink to Autonomic neuropathy. However, this article, which seems to provide a general grab-bag of any autonomic system dysfunction, gives no information at all about autonomic neuropathy. If an article has nothing useful to say on a topic, why redirect there? — Preceding unsigned comment added by 60.224.113.50 (talk) 22:04, 23 June 2012 (UTC)


 * Autonomic neuropathy leads to the clinical symptoms of dysautonomia. It's the disease process vs the resultant symptoms. Perhaps we should make that clearer. JFW &#124; T@lk  22:47, 23 June 2012 (UTC)

Autonomic neuropathy is not the only disease process causing dysautonomia and I have edited it to reflect such. There are multiple transient conditions that cause dysautonomic symptoms as well. Autonomic neuropathy has been reinstated as a page by myself, as such, and I will be working on making both clearer as to the various disease processes causing dysautonomia. Volshe (talk) 02:25, 13 September 2016 (UTC)Volshe

Mitochondrial disease
added a paragraph about autonomic dysfunction being common in mitochondrial diseases. This was supported with a primary research study. A recent review (10.1002/ddrr.110), however, is much more guarded about this:

Lastly, while autonomic dysfunction has been discussed as a possible and plausible problem in mitochondrial patients, very little empiric data currently exists to support this concern.

I can therefore not support discussion of mitochondrial disease as a cause until a better source is provided. JFW &#124; T@lk  21:03, 22 December 2014 (UTC)

Most if not all Dysautonomia and Mitochondrial Dz advocacy organizations continue to list Mitochondrial Dz as a possible cause of Dysautonomia.Charley sf (talk) 14:37, 3 June 2015 (UTC)


 * There is this : http://www.mitoaction.org/blog/dysautonomia Vmelkon (talk) 23:45, 18 June 2015 (UTC)

Mitochondrial disease is certainly being viewed as a cause of dysautonomia. I will find more scholarly articles during my edits and modify the page to reflect such. Volshe (talk) 02:04, 13 September 2016 (UTC)Volshe

Incorrect Information Overhaul
I am currently in the process of a mass overhaul of this and other dysautonomia related pages. Quite frankly this page is riddled with misinformation and it must be rectified.

And for the love of the Gods, please don't add POTS or autonomic neuropathy back in as the sole causes. Thanks. Volshe (talk) 02:04, 13 September 2016 (UTC)Volshe

merge
in regards to this...
 *  might support (though it might need reviews) --Ozzie10aaaa (talk) 22:12, 25 June 2017 (UTC)
 * Merge as soon as possible. The "vegetative-vascular dystonia" article is basically about autonomic dysfunction except under the translated Russian name for the same. JFW &#124; T@lk  11:00, 26 June 2017 (UTC)
 * ✅--Ozzie10aaaa (talk) 11:02, 8 July 2017 (UTC)

Dysautonomia - single condition or multiple?
Is Dysautonomia a condition? I've always thought that it's an umbrella term for multiple conditions (eg "[Condition] is a form of dysautonomia"). Is idiopathic dysautonomia its own condition? — Preceding unsigned comment added by User:Waitalie Nat (talk • contribs)
 * --Ozzie10aaaa (talk) 08:19, 1 July 2018 (UTC)

Multiple Types
I don't see much information about the different types of dysautonomia (e.g. POTS). RareDiseaseWikiFacts (talk) 20:18, 5 January 2021 (UTC)
 * will look--Ozzie10aaaa (talk) 21:41, 5 January 2021 (UTC)


 * It might need its own section. RareDiseaseWikiFacts (talk) 22:10, 5 January 2021 (UTC)