Talk:Evans syndrome

Prognosis Citation Needed
I have the citation for the data regarding prognosis, however I don't know how to add it in properly. Here is the original abstract link: http://journals.lww.com/jpho-online/pages/articleviewer.aspx?year=1997&issue=09000&article=00005&type=abstract The authors of the study were: Mathew, Prasad M.D; Chen, Gang Ph.D; Wang, Winfred M.D. The abstract was published here: Journal of Pediatric Hematology/Oncology: September/October 1997 - Volume 19 - Issue 5 TranquiliC (talk) 20:17, 29 February 2012 (UTC)TranquiliCTranquiliC (talk) 20:17, 29 February 2012 (UTC)

White Cells
Evans can also affect the white cells as well as the red cells and the platelets. This should be added. http://rarediseases.info.nih.gov/GARD/Condition/6389/Evans_syndrome.aspx. 87.194.81.2 (talk) 23:12, 10 November 2011 (UTC)

Any
Any ideas who this is named after? (Presumably someone called Evans) Bobstar 00:47, 15 December 2005 (UTC)


 * It was named for Robert S Evans, born 1912, aka Bud Evans. He was best known as a caring and compassionate man, and an annual award is given in his name. I will work on updating this information with regard to Evans Syndrome. TranquiliC (talk) 21:42, 24 February 2009 (UTC)


 * I know nothing about R.S. Evans, whose original paper is cited. Nothing on whonamedit. JFW | T@lk  09:08, 15 December 2005 (UTC)

All the info is about a childhood condition? My sister was just told she has this and she is 40+ years. Has there been any new research? I am 58 and have had one long year of medical problems all steming from a low iron. Which has caused havick with my immune system. Since we're related I wonder what the conection might be? Any idea's ?216.40.209.79 05:41, 3 February 2006 (UTC)

I think it should read Evans' syndrome and not Evan's syndrome. Redirects need correcting. Snowman 16:07, 18 March 2006 (UTC)


 * In the USA eponymous diseases are written without the S (e.g. Parkinson disease). JFW | T@lk  21:06, 18 March 2006 (UTC)


 * It should most definitely be Evans Syndrome...it is not named after Dr. Evan and it is also not Dr. Evans' possessed disease. It is very much simply Evans Syndrome. TranquiliC (talk) 21:48, 24 February 2009 (UTC)

This disease also occurs in dogs and cats. I Could potentailly add more info about specific treatment as well as symptoms for animals. That sound like a good idea? -- Mr . Dude †@&pound;К ║  Çøת†яĭβü†ĬŎИ 22:41, 1 June 2006 (UTC)
 * Sounds interesting to me. If you started a new page you would be able to design it from a blank page.  Snowman 08:35, 2 June 2006 (UTC)


 * If we're simply talking about Evans Syndrome in general, then sure, there could be a section on how it affects other animals, however, the focus of this article is primarily the affect on the human animal. I cannot write with any authority on the illness as it affects any other living creature. TranquiliC (talk) 21:48, 24 February 2009 (UTC)

Copyvio
Whilst I don't dispute this condition exists, nor that it is notable, this article was created as a direct copyvio of http://www.madisonsfoundation.org/index.php/component/option,com_mpower/Itemid,49/diseaseID,81/ I have therefore removed this copyrighted material on sight. The sections in the article therefore need rewriting, using appropriate selection of secondary & primary sources. If anyone with detailled knowledge of the condition would like to have a go please do, else I'll have a start at what is currently now just a stub. David Ruben Talk 03:07, 29 October 2007 (UTC)


 * Thanks for setting us straight on that. That said, the information out there on this illness is woefully inadequate and I know personally that there are desperate people out there searching for answers so any appropriate enhancement to this article would be a welcome change. With what authority do I say this? I am co-administrator of the Evans Syndrome Community Network on Facebook and at http://www.evanssyndrome.net. Let's get this thing in working order so that we can provide some badle needed reference material for families affected by this illness. Thanks all. TranquiliC (talk) 21:51, 24 February 2009 (UTC)

Josh Kinney
I have Evans Syndrome. I've had Hemaglobin as low as 3 and platelets at 0 for over two and a half weeks. I just spent two and a half weeks in the hospital with 0 platelets and almost bled to death 4 times. I woke up Easter Sunday covered in my own blood bleeding everywhere from my face. I had been healthy for a year and a half. I'm just curious if there is anyone else out there that puts up with as much crap as I have with Evans Syndrome. Also if anyone is doing any research as to what is the cause or if there is any new medicine out there. Any updated information would be greatly appreciated. If anyone has any questions about Evans Syndrome they can email me at joshkinney20@yahoo.com I know a lot and can help anyone out and am very knowledgeable about it and current treatments. Again if anyone has any information or updates about research for Evans Syndrome please contact me through that email address. Thank you. Josh Kinney (talk) 05:20, 12 June 2008 (UTC) Josh, We just found out that my 16 year old daughter has evans sydrome....we are lost! i have been taking her to the mayo clinic, but it seems no matter where i take her all they want is for her platlets to drop. she has been in between 32000 and 28000. we are lost the last thing i want is for her to wake up in a pool of blood! i need to know more...so if anyone can help me i am at nineenbartlett@yahoo.com PLEASE i want my baby fixed! thank you nineen —Preceding unsigned comment added by 173.27.5.127 (talk) 17:51, 27 October 2009 (UTC)

Resources
It would be helpful to have resources about Evans Syndrome listed at the end of the article - particularly links to any groups. The only one I've found on the web is pretty inactive and therefore I haven't listed it. (Update - one now added, but more would be good) Rowmn (talk) 19:40, 3 September 2008 (UTC)


 * As a person with Evans Syndrome, I can tell you that the Yahoo group currently listed in the article is very active. The Facebook is very new, having been created in November 2008. The Evans Syndrome Community Network has worked with members behind the scenes to hook them up with people similar to themselves (i.e. similar age group, similar circumstances, etc), and is working on a new way to help families affected by Evans Syndrome as a not-for-profit organization by the end of 2009. TranquiliC (talk) 22:11, 24 February 2009 (UTC)

We should remove the Yahoo group from the list of resources. It is no longer active with people who have Evans Syndrome, but is instead used by spammers for various and sundry items.TranquiliC (talk) 23:38, 4 June 2012 (UTC)

Added new support page at RareConnect from NORD and EURORDIS. Removed Healthshare Groups, as it is no longer in existence. TranquiliC (talk) 13:23, 15 June 2012 (UTC)

Causes
I have edited the document to include a more concise description of the cause of the illness. . TranquiliC (talk) 19:11, 4 September 2012 (UTC)

edit to See Also
Removing reference to Amyotrophic lateral sclerosis, as this condition has absolutely nothing to do with autoimmunity or Evans Syndrome. TranquiliC (talk) 01:50, 16 May 2013 (UTC)TranquiliC