Talk:Hyperacusis

Deena Larsen hyperacusis
I don't think I can put this in as it is a conflict of interest, but I do explain my own hyperacusis in relationship to electronic literature in https://electronicbookreview.com/essay/better-with-the-purpose-in-or-the-focus-of-writing-to-reach-all-of-your-audience/

I
I added a symptoms list but am very new to wikipedia. My information came from:

http://www.hyperacusis-tinnitus.com/hyperacusis-symptoms.html

and

http://www.vestibular.org/vestibular-disorders/specific-disorders/vestibular-hyperacusis.php

If the information needs to be cited can someone please take care of that? I'm sorry to be such a newb.

advocacy
I think there should be a section added about advocacy of Hyperacusis. Not everyone can cure it. I don't see why it's so difficult for people to comprehend the concept of, what is not considered so loud for you is extremely loud to me. Especially when it comes to sitting near chidren. I see ads for Fybromialgyia as saying "If you could see how I'm hurting, would you care?" Apperantly there's no room for that type of sympathy when it comes to Hyperacusis. Just, "Grin and bear it, listen to Pink Noise, and hope that works."

I don't ask for much, just not to sit down near a family of small children at a resturant so I won't have to cover my ears. Why is that so freaking difficult? It'd be different if I expected everyone around me to shut up. I don't think Hyperacusis would be ignored as an issue, if it weren't for that it means people don't want to be around the precious children.

Perhaps people don't understand the concept of disability:

I cannot change this.

Is it really that so many people are so selfish, as to not cause another person suffering, when it requires such small effort on their part? In fact the whole invisble disability thing. You know what, if I say this causes me problems, I don't do it for fun. Who would? Someone who enjoys having people assume the reason they have an issue with noise is a "retard". Or a person who likes that people don't belive they have a problem with loud noise, until they scream to block the noise out and then most certainly, are considered to be a "retard" by most people. Is that really the only option? To act "retarded" to get people to belive you?

I think people in the Hyperacusis community need to stop acting as if their only option is to try and make their invisible disability more convenient for others. I'm sorry, I don't see how listening to Pink Noise is going to magically make me not jump when I hear a balloon pop. We have to speak up on behalf of ourselves, like people with Fibromyalgia. They don't say, "Well I'll just have to put up with the pain when people touch me."

I'm sorry it's such a huge inconvenience for people to realize, that not everyone with a disability is in a wheelchair, or has their arms curled up and are drooling. That's part of being an adult, realizing that you can't judge everything just by sight alone. Although between this and the prevailing sizeism in our country, it seems there are alot of adults out there very comfortable in perceiving people like a small child would. Violet yoshi (talk) 13:11, 28 March 2008 (UTC)


 * I thought it'd be a good idea to mention this under this section, I appreciate this part of the symptoms section:


 * "A person suffering from hyperacusis might be startled by very low sound levels. Everyday sounds like shutting doors, ringing phones, running water, cooking, normal conversation and many others will hurt his/her ears. In extreme situations even the use of earplugs fails to bring relief and the patient may spend his life trying to avoid all sounds and just stay at home."


 * That's exactly how it is, I'm glad someone was able to communicate this in terms, I was unable to do myself due to the emotional impact I have from being misunderstood constantly with regards to the above experience. Thank you, to whoever posted that. Violet yoshi (talk) 13:26, 15 June 2009 (UTC)


 * Even though my case isn't even near to severe, I fully agree with you, Violet yoshi. The scream of a small child (when he/she asks for attention); the volume and pitch are just perfect to cause real pain - it's like someone would be poking my brains thru my ears with long needles. And how many of your friends can hear the beeping of a normal cellphone charger? How about televisions. The lack of flicker and smaller size (in depth) are not the only positive sides - that high pitched sound that old TVs keeps when you put them on is also gone. When I was a kid, if I was alone in a room, I covered my ears (one ear against shoulder) while turning TV on. Same with flushing toilet, even though usually that wasn't very loud sound, but very uncomfortable regardless. But luckily, aging slightly smoothes the sympthoms of hypersensitivity (not only hyperacusis). On the other hand, I don't consider this as a disability in my case, more of a characteristic. F-3000 (talk) 16:58, 16 December 2011 (UTC)

hyperacusis ? hyperacousis
The first spelling would seem to link to 'acute' while the second would link to 'acoustic'; on the wider web both spellings occur. The slightly larger consensus is for acoustic but there should be a redirect 86.155.91.42 (talk) 16:01, 13 October 2008 (UTC)

Stigma
I think it should be mentioned that people with Hyperacusis, on almost a daily basis, encounter little to no understanding from others for their condition. For example, if a person with Hyperacusis asks to be seated away from noisy children, they usually are made to confront the parent and try to explain this to them, where the parent will attack the person with Hyperacusis claiming they're lying or "looking for attention"

There needs to be more awareness about this, that people who have Hyperacusis cannot choose to not experience pain when it comes to sudden loud noises. It is real pain, that in some cases, can be so severe the person may feel a need to scream from it. White noise & Pink noise can help, but as far as I'm aware there is no cure for Hyperacusis. I find it hard to function as someone with Hyperacusis, in a world where people treat me as if my pain in regards to it is insignificant.

Particularly, parents need to understand this isn't about them, their children, or their parenting abilities. It's a person who doesn't want to disturb their children, who is going out of their way to think of the children first. Only to be called a child hater, or told they know nothing because they aren't a parent. It's also common for parents to yell at the person with Hyperacusis, causing them pain and anxiety. They're only assuring that people with Hyperacusis see parents as agressive, or something to be fearful of, in regards to their Hyperacusis. I also, don't mean this in regards to all parents, but most of the ones I've come across have had this attitude that I must be lying for attention, when I have a real condition that can cause me real pain.Violet yoshi (talk) 18:50, 16 June 2009 (UTC)

Newly developed theoretical framework
See http://www.a3ccm-apmas-eakoh.be/index.htm —Preceding unsigned comment added by 94.208.64.217 (talk) 21:08, 9 February 2011 (UTC)

Removal of content
The following was removed stating TTTS has no medical relevance - intend to reinstate this valid information and shall add other ref.
 * A person with hyperacusis might be startled by very low sound levels. Everyday sounds like shutting doors, ringing phones, television, running water, ticking clocks, chewing gum, cooking, normal conversation, eating, dishes, and other sounds will cause varying levels of annoyance and can potentially pain the ears. In many people with hyperacusis, an increased activity develops in the tensor tympani muscle in the middle ear as part of the startle response to some sounds. This lowered reflex threshold for tensor tympani contraction is activated by the perception or even anticipation of loud sound, and is called tonic tensor tympani syndrome (TTTS). In some people with hyperacusis, the tensor tympani muscle can contract just by thinking about a loud sound. Following exposure to intolerable sounds, this contraction of the tensor tympani muscle tightens the ear drum, which can lead to the symptoms of ear pain/a fluttering sensation/a sensation of fullness in the ear (in the absence of any middle or inner ear pathology). However, in a published study, researchers studied the case of an acoustic shock whose mechanisms suggest dysfunction of the tympanic tensor muscle. This study appears to be the first to provide experimental support suggesting that middle ear muscles (MEM) may behave abnormally after an acoustic shock. It is suggested that abnormal contractions (eg tonic contractions) of the tensor tympani muscle may trigger neurogenic inflammation. Indeed, fibers with substances P and CGRP were found in close proximity  .Similar mechanisms may exist for hyperacusis, but research is still needed.      and acoustic shock. --Iztwoz (talk) 22:08, 15 October 2017 (UTC)


 * TTTS is no generally accepted concept. It is totally missing in textbooks and review articles. Even if it was an accepted concept, we could not place it here, because a possible connection to hyperacusis is nothing but speculation. We have to stick to accepted knowledge based on secondary sources. --Saidmann (talk) 11:38, 16 October 2017 (UTC)


 * So what is the title in the third reference referring to?--Iztwoz (talk) 14:27, 16 October 2017 (UTC)


 * First, this is original research, but we need secondary sources.


 * Second, the authors write (in abstract): "The high prevalence of TTTS symptoms suggests they readily develop in tinnitus patients, more particularly with hyperacusis." This does not establish a connection. It is purely suggestive.


 * Third, this paper has only been quoted three times (!) by other papers, none of which was dealing with hyperacusis.


 * --Saidmann (talk) 19:07, 16 October 2017 (UTC)

Rarity
The article opens with: “Hyperacusis is a highly debilitating rare hearing disorder” (emphasis mine). But it then goes on to say: “Hyperacusis is often coincident with tinnitus. Both conditions have a prevalence of about 10–15%”

10-15% does not really seem “rare” to me at all. Should we remove that word from the intro?

213.55.169.211 (talk) 12:07, 9 June 2020 (UTC)


 * Figure given was just appropriate for tinnitus - have adjusted and added ref.--Iztwoz (talk) 18:19, 9 June 2020 (UTC)

Over-protection
Over-protection (by wearing earmuffs and ear plugs) can also cause hyperacusis. I think it's important to include this in the article. That's how my case began; it's real and it's serious. I have also read and talked to others who went through the same. Also, probably almost every book, like Tinnitus Retraining Therapy mentions it as a worsening factor. Speed57 (talk) 10:42, 29 July 2022 (UTC) The aforementioned book says overprotection promotes both tinnitus and hyperacusis; p175. Also, I believe this Wikipedia edit is not original research; rather, it's common knowledge among hyperacusis patients. Speed57 (talk) 10:48, 29 July 2022 (UTC)

Further reference that backs up the claim that over-protection can cause or aggravate hyperacusis: https://hearing-institute-of-resources.fr/en/noise-hyper-sensitivity/ Speed57 (talk) 09:16, 17 November 2022 (UTC)

Adding more details to noxacusis
There has been recent research that suggests noxacusis is caused by the type II nerves acting as pain neurons in a response to damage of the outer hair cells. This is one of the most cited research papers on the subject

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4664349/

Here is Megan Beers Wood discussing the subject on an article by Hyperacusis Research. She had just received a grant from them to further research the subject.

https://hyperacusisresearch.org/hyperacusis-research-supports-2022-research-grant/

I believe adding this information to the noxacusis section would be helpful.

EDIT: I just realized that this is discussed under Neurophysiological mechanisms. Please ignore my post.

JordanFireStar (talk) 06:46, 11 September 2023 (UTC)

Wiki Education assignment: Wikipedia for the Medical Editor
— Assignment last updated by CEROES (talk) 04:15, 10 November 2023 (UTC)

Why was photo removed?
Hi I had added a photo of a hyperacusis patient that I took myself... and it was removed. I was wondering why? If this was inappropriate, please let me know? Thank you LoveElectronicLiterature LoveElectronicLiterature (talk) 01:38, 18 November 2023 (UTC)