Talk:Kennedy's Disease Association

Independent citations for verification
Most information in this article is taken from the organization's website. However, it is a small organization, and is not likely to have newspaper or other independent sources for verification. The organizations website provides a listing of all research grants funded since 2000, which is consistent with information in the article, but cannot be independently verified. Similarly, information on membership and the scientific advisory board is self-reported and cannot be independently verified. It is note worthy that members of the organization's Scientific Review Board (Drs. Andrew P. Lieberman, Kenneth Fischbeck, Albert La Spada, Diane Merry, Pietro Fratta) are authors of the primary references on the Spinal and bulbar muscular atrophy article.

Please provide guidance on what sort of independent citations could be reasonably expected for this type of organization. In reviewing the large article on the Muscular Dystrophy Association (MDA), most factual information in this article appears to be self-reported by the MDA. Rcborden2 (talk) 18:37, 11 January 2023 (UTC)