Talk:Langer-Giedion syndrome/to do

My daugher was just diagnosed with TRPS. What are some basic things can I do to make her life easier ? Treat her like you would treat any other child.I have a 5 yr. old daughter with this syndrome and she is like anyother 5 yr. old child.Theres really nothing you can do unless she starts having symptoms and even then there not much.Find the best doctor there is where you live that specilaizes in thi syndrome like I did it does make it a little easier.But really the only thing you can do is love your daughter with every bit of your heart because to her theres nothing wrong with her only we know different.Try to stay strong but if you cant dont let her see.Also the people around you been well but they have no idea what your going threw and youll probably have to here pep talk after pep talk but just remember their tryin to help I know that but it still is hard to hear all the time that youll get threw this and shell be fine because deep down we know are babys still have to go threw this and its never really over for them or us.But like I said just love thats all are babys need.I hope I helped even if it was just a little.