Talk:Neutropenia

Article is weak in places
The article is really weak in places, and reads as if neutropaenia is limited to ENT infections. I can tell you after 12 years of this, reading the research from international bodies, and talking to other patients: neutropenic infection impacts every part of our lives, organs, and manifests in multiple ways.

I really feel a lot of this article needs clarity and clarification.

How does anyone else feel?

If I don't hear objections by 15th April 2022, I'm going to start pulling sections from the neutropaenia handbooks from the international research team: and rewriting this article to better reflect our situations.

As it's such a rare disorder, it's very difficult to have the condition taken seriously by anyone who isn't a nurse practitioner or doctor - and even then, some don't understand the severity of the condition (eg, that even mild neutropaenia is life threatening if you develop a more serious or antibiotic resistant bacterial, fungal, or (some) viral infections).

Many (ie, psychiatric nurses/HCAs) will look to Wikipedia for a shorthand quick explanation; however this has/will cause them to miss the reality, risk signals, and think it's just an infection in the mouth/ENT, rather than systemic which can kill us within 10 days (eg, UTIs which turn into sepsis in a matter of a few days, fungal lung infections which become life threatening, a scratch which even after washing turns into blood poisoning and necrotic tissue causing loss of limbs or organ failure).

Our lives are both limited and shortened by this disorder, even in its mild form: this needs to be captured fully in the opening few paragraphs, then expanded upon in each section in more details.

Thank you for your thoughts.

Neuts Woman. BA MA Cantab (medical sociologist) 82.38.243.194 (talk) 00:37, 31 March 2022 (UTC)
 * as with all editors, please edit as you have indicated (please follow MEDRS)--Ozzie10aaaa (talk) 01:20, 31 March 2022 (UTC)