Talk:Protein C deficiency

Personal testimonies
Hi, my name is Brad. I was born in colorado, i rescently moved to Rhode Island, to live with family. I am 25 years old and I have Protein C Deficiency.

The first time I heard that I had it was when I turned 17 years old. I had a pain in my right leg that moved up from my ankle to my groin. I didnt know what it is was because I had no signs of having a blood clot besides the pain in my leg but it felt like I pulled a muscle. After I had the pain for about 2 weeks I went to the hospital and they did a altra sound on my leg and they found out that I had mutiple clots in my leg. So they admited me into the hospital. They put me on lovinox for about 6 six days twice a day. The last day they asked me if I wanted to go home and I told then I will stay one more night. That night my heart stopped and I woke up to the preist reading me my last rights. I didnt know what was going on until I heard that one lung was 98% filled with clots and the other one was 60% filled. They gave me a choice to stay there or get flight for life to another hospital that had better treatment then what i was getting. They said if I do that then I would have a 30% chance of living. Of course I did the flight for life to the other hospital, where there they gave me hemprin. And after 7 days on that I went home and I had to learn how to walk again bc when I was in the hospitals they told me not to move at all. Since then I been in the hospital for clots one time that is it, but they put me on coumadin for the rest of my life.

I have doctors over in denver that I go to but just rescently moving over in Rhode Island I would like to get researched but some doctors over here and try what is ever new out there and to find out more about this disorder. you can email me at axle102_69@yahoo.com to get ahold of me.--70.188.176.115 (talk) 03:59, 9 February 2009 (UTC)

My name is Kelly and I was 19 when I broke my back and two months later I devolped a pain in my left thigh and thought it was a pulled muscle. After a couple of weeks of that pain I thought that I was going to die on night I told my parents that my heart hurt and that pain never did leave. The drs didn't know what to thing, I had pain in my leg that I told them that it felt like a pulled muscle and my heart hurt and by that time my whole chest hurt. I never did tell them that I was on birth control, but they did know about my back. I should have told them that my mom and grandma had bloodclotd through out their lives, that could have help too. When they finally figured out what it was thanks to a nurse, I had a clot from my knee into my pelvis and multiple PEs in my left lung. It was hell!! I have had clots with my pregnancies usually after because they have had to give me blood during labor, but so far they have been very small. I will be on blood thinners the rest of my life I think. You can reach me by email at trent2000@scintetnet.net if there are any questions or thoughts on this subject. Interesting side thought. After this happened with me, my mom, grandma, and my moms sister have all been diagnoised with Protein C Dif. —Preceding unsigned comment added by 216.241.199.200 (talk) 03:35, 16 September 2010 (UTC)