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BRIEF PRESENTATION of SCIENTIFIC SOCIETY FOR RARE DISEASES AND ORPHAN DRUGS

A scientific Non Profit Society of Greek Scientists of different specialties, bearing the name: Scientific Society for Rare Diseases & Orphan Drugs (E.E.S.P.O.F) It encompasses the Scientific Academy bearing the name “Rare Diseases Academy-Hellas” It is a nonprofit society, founded in 2009 by 47 Founding Members and seats in Athens Attica of Greece.

PURPOSE S.S.R.D.O.D’s purpose is: a)	To study Rare Diseases, for their enhanced diagnosis, prevention and treatment.

b)	To study Orphan Drugs and their development in conjunction with Rare Diseases.

c)	To provide opportunities to its members for the acquisition of experience, the development of new, novel ideas and the strengthening of scientific cooperation. This can be attained by means of training and hands-on seminars given for those members that are involved in the diagnosis and treatment of patients with Rare Diseases.

d)	To elaborate, conduct and oversee Programs of Continuing and Post Graduate Medical Education, Post Graduate Courses in the field of Rare Diseases, related scientific fields and disciplines.

e)	To mobilize the potential existing in the EU and its programs available for research and social purposes. To establish close cooperation with similar Societies active abroad or with EU organizations in matters of training and research in social protection.

f)	To defend the scientific subject and the professional praxis in the field of Rare Diseases and Orphan Drugs, by assuring the observance of the rules of ethical conduct among professionals as well as between them and society at large.

g)	To intervene and inform public opinion about issues relative to Rare Diseases and Orphan Drugs, the Society’s purposes and ways to promote them.

h)	To utilize, by all the legitimate and adequate means available, the knowledge and experience of the medical and other Scientific specialties, for the development of methods which will benefit science, society and the quality of life of those suffering from Rare Diseases.

i)	To promote research in every possible way, including the sending of young scientists and resident doctors to major centers abroad or at home, to participate in research projects or to enhance their knowledge through further training.

j)	To cooperate with international scientific, professional organizations or unions, through the establishment of subsidiary Unions.

MEMBERSHIP The membership of the Society is composed of regular, honorary, correspondent, associate and assisting members.

a)	Regular members: can be medical doctors of any specialty and other scientists, whose work has been acknowledged by means of the appropriate certification, to belong to the scope of the society (such as pharmacists, Nursing professionals, Psychologists, Biologists). They may be of Greek or another nationality, provided they have the right to exercise their profession in Greece.

b)	Honorary Presidents of the Society can be proclaimed, upon decision of the Governing Board, members that have provided their services to the Society over a considerable period of time and/or have been Presidents of the Governing Board of the Society.

c)	Honorary members of the Society are proclaimed medical doctors and other scientists of Greek or another nationality who are widely recognized authorities in the field of Rare Diseases and Orphan Drugs.

d)	Correspondent members are proclaimed doctors and more generally health professionals outside Greece.

e)	Associate members can be Greek or Foreign Resident Doctors and other Scientists as well.

f)	Assisting members are proclaimed legal entities or natural persons who offer an important financial or any other form of assistance to the Society. They are called members, donors, benefactors, or great benefactors.

If you are interested in becoming a Member of S.S.R.D.O.D., you are kindly requested to fill-in the Registration Form and fax it to +30 210 6031594 or e-mail it to info@eespof.gr.