User:BelovedB/sandbox

{{User sandbox LITERATURE REVIEW ON “FAMILY CARE FOR CHILDREN WITH DISABILITIES” Wisconsin Family Impact Seminars (2002) state that family care is a family-cantered approach to health care in order to help curb rising health care costs. Researchers increasingly recognize** Families play important roles in influencing the lifestyle of their children with disabilities. Some of these roles include acting as gatekeepers to the health care system1.**** From prevention to long-term care, families both influence and are influenced by the health of their individual members. Doherty (1994) divides families’ experiences in the health and illness cycle into five major roles which are adaptation to illness and recovery; health promotion and risk reduction; vulnerability and disease onset relapse; appraisal; and acute response. However, Beresford (1995) stated that the demands placed on parents attempting to meet the child’s care needs are high, and they face the additional pressure of dealing with behaviour problems and mobility dependency. Disability is a complex issue. It can be understood differently and described differently depending on the cultural context. However, there is a general agreement that the definitions provided in global conventions are a good place to start. The UNICEF (2008) says that persons with a disability include those who have long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder their full and effective participation in society on an equal basis with others. According to Sharief (2014), constant psychological stress, negative effect on siblings, misunderstanding within the family and economic burden were significant factors associated with the families of disabled child. Sammon and Burchill (2018) state that a child’s disability can be present at birth, sometimes described as a congenital disability;Children can also acquire a disability later in life. Children living in a residential institution can acquire a disability because of the severe neglect they often experience; and Children with a disability can also experience a mental health disorder. Be that as it may, family care is the first step towards helping children with disabilities.