User:Dannysmiricky/sandbox

The International Rare Diseases Research Consortium (IRDiRC) is an international grouping of research funders that aims to foster international collaboration in rare disease research. IRDiRC teams up researchers and organisations investing in rare diseases research in order to achieve two main objectives: to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases by the year 2020.

Purpose
The objectives of the IRDiRC are to deliver 200 new therapies for rare diseases and means to diagnose most rare diseases by the year 2020.


 * establishing and providing access to harmonized data and samples,
 * performing the molecular and clinical characterization of rare diseases,
 * boosting translational, preclinical and clinical research,
 * streamlining ethical and regulatory procedures.