User:Dubbin/Huntington external links

'''Note: please discuss at User_talk:Dubbin/Huntington_external_links or Talk:Huntington's disease.

International and national support organizations

 * International Huntington Association - Umbrella organization for national HD Associations
 * Huntington's Disease Society of America
 * HD Association England & Wales
 * Huntington Society of Canada
 * HD Australia
 * Scottish Huntington's Association
 * HD Association Northern Ireland

Major online 'trans-national' resources for lay readers

 * HOPES project - Stanford University's collaborative and highly respected HOPES project
 * HDBuzz - HD research news written by scientists in plain language; funded by the major lay organizations and their main source of research news. 10 languages.
 * HD Drug Works - a reliable source of news about current treatments and planned trials
 * HD Lighthouse - a popular community-led site offering advice and support. This may be too forum-led to merit inclusion
 * Predictive testing for HD - reliable information for people considering a predictive genetic test Too granular?
 * Our HD Space - reliable information about HD for young people Too granular?

Major research organizations

 * The Hereditary Disease Foundation - the first major collaborative research and funding endeavor, still highly active in HD research
 * Huntington Study Group - a large US consortium of researchers and clinicians with a focus on clinical trials in HD
 * European HD Network - a Europe-wide consortium of researchers and clinicians aimed at accelerating research and care for HD
 * CHDI Foundation - the CHDI Foundation is the largest funder and driver of HD research globally