User:Janeannyoung/sandbox/Familial exudative vitreoretinopathy

Familial exudative vitreoretinopathy new article content ...

Category
Rare Disease Chronic Disease

Causes
FEVR genetics paragraphs (genetic table here)

Mechanism
pathogenesis and pathophysiology.

Diagnosis
Complete retinal exam with floricine angiogram by a retinal specialist. Genetic Testing

Misdiagnosis
In Premature Birth Differential Diagnosis of ROP when premature birth occurs.

Pediatric and Adolescent
management of a Chronic Disease Children with chronic illness Art and Play Therapy Preventing Emotional Trauma

Adult
Counseling and support groups for Parents Coping skills Disappointment

Risk Factors
Rare Disease, unknown prevalence Genetic Testing/counseling

History
FEVR First medical paper History of FEVR genetics. Development of Pediatric retinal opthmology outdated treatments - chirothearapy (freezing/burn of retina) Development history of vitrectomy (Youtube video) Breakthrough in treatment. Photocogualation (Laser surgery) History Pediatric Psychology - Improvements in understanding of pediatric psychological issues relating to chronic medical procedures.

Research Directions
FEVR gene identification Gene therapy of human retina USA NIH Gene Eye Project (Need to get correct name and link) Gene therapy of human retina

Other Resources What is a FEVR doctors American with Disabilities Act

Possible Categories Health and fitness Health Health science Clinical Research Diseases Human medicine Human Genetics Ophthalmology Pediatrics Surgery Rare disease Chronic Illness Pediatric psychology Developmental psychology Counseling