User:Jmylaughter/Children's hospice/Bibliography

Aschenbrenner, Ann P.; Winters, Jill M.; and Belknap, Ruth Ann, "Integrative Review: Parent Perspectives on Care of Their Child at the End of Life" (2012). College of Nursing Faculty Research and Publications. 163. https://epublications.marquette.edu/nursing_fac/163

Downing J, Powell RA, Marston J, et al Children's palliative care in low- and middle-income countries Archives of Disease in Childhood 2016;101:85-90.

Friedrichsdorf SJ, Bruera E. Delivering Pediatric Palliative Care: From Denial, Palliphobia, Pallilalia to Palliactive. Children (Basel). 2018 Aug 31;5(9):120. doi: 10.3390/children5090120. PMID: 30200370; PMCID: PMC6162556.

Hadi MA, McHugh GA, Closs SJ. Impact of Chronic Pain on Patients' Quality of Life: A Comparative Mixed-Methods Study. J Patient Exp. 2019 Jun;6(2):133-141. doi: 10.1177/2374373518786013. Epub 2018 Jul 5. PMID: 31218259; PMCID: PMC6558939.

McCarberg, Bill H MD1*; Nicholson, Bruce D MD2; Todd, Knox H MD, MPH3; Palmer, Trish MD4; Penles, Leslie MBA5. The Impact of Pain on Quality of Life and the Unmet Needs of Pain Management: Results From Pain Sufferers and Physicians Participating in an Internet Survey. American Journal of Therapeutics: July 2008 - Volume 15 - Issue 4 - p 312-320. doi: 10.1097/MJT.0b013e31818164f2

Norris S, Minkowitz S, Scharbach K. Pediatric Palliative Care. Prim Care. 2019 Sep;46(3):461-473. doi: 10.1016/j.pop.2019.05.010. Epub 2019 Jun 12. PMID: 31375193.

Weaver MS, Mooney-Doyle K, Kelly KP, Montgomery K, Newman AR, Fortney CA, Bell CJ, Spruit JL, Kurtz Uveges M, Wiener L, Schmidt CM, Madrigal VN, Hinds PS. The Benefits and Burdens of Pediatric Palliative Care and End-of-Life Research: A Systematic Review. J Palliat Med. 2019 Aug;22(8):915-926. doi: 10.1089/jpm.2018.0483. Epub 2019 Mar 5. PMID: 30835596; PMCID: PMC6755658.

https://www.agrace.org/about-agrace/

https://elizabethhospice.org/hospice-care/pediatric/