User:Johnasanders/Nystagmus network

Nystagmus Network

The Nystagmus Network (also known as NN) is a UK registered charity (803440) set up in 1984. It has two main aims: to support people with the eye condition nystagmus and to encourage research into nystagmus. NN is British Contact Lens Association (BCLA) charity of the year 2009/2010.

NN has published a number of books about nystagmus including:

	Early Onset Nystagmus

	Tales of Northwick

	Wobbly Eyes

The charity also publishes a quarterly newsletter and holds an annual open day.

Support

NN operates both telephone and email support for families affected by nystagmus. The charity provides information and advice on:

	diagnosis and prognosis

	Disability Living Allowance (DLA)

	driving

	education

	employment

	emotional issues

	research projects

	treatment

Research

NN has organised two international research workshops, the first in 2005, the second in 2009. Both events brought together 30 vision scientists, ophthalmologists, neurologists and other experts from around the world. They discussed the mechanisms of nystagmus and how to develop ways to better manage and treat the condition.

NN funds individual research projects and helps recruit research subjects. Current nystagmus research projects are looking at:

	drug treatments for nystagmus

	genetics

	reading and nystagmus

	stress and nystagmus

	surgery for nystagmus

Education and training

NN provides speakers for professional training events (including CPD) on what it is like to live with nystagmus and how to reduce the impact of the condition. Audiences include teachers of the visually impaired, orthoptists, optometrists, ophthalmologists, social workers, rehab workers, other charities and organisations with the visually impaired.

External Links

[Nystagmusnet.org] – official website and online forum

[Nystagmusnet.co.uk] – online forum

Sources for all information: www.nystagmusnet.org, NN publications and the Nystagmus Network (info@nystagmusnet.org)

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