User:PECUSFwebmaster/Rare Diseases Clinical Research Network

The Rare Diseases Clinical Research Network (RDCRN) was created to facilitate collaboration among medical and research experts in many different types of rare diseases. The Network has two main components: Rare Diseases Clinical Research Consortia (RDCRCs) and a Data Management and Coordinating Center (DMCC)

Purpose
The purpose of the Network is to facilitate clinical research in rare diseases through support for 1) collaborative clinical research in rare diseases, including longitudinal studies of individuals with rare diseases, clinical studies and/or phase I, II and II/III trials; 2) training of clinical investigators in rare diseases research; 3) pilot and demonstration projects; 4) a test bed for distributed clinical data management that incorporates novel approaches and technologies for data management, data mining, and data sharing across rare diseases, data types, and platforms; and 5) access to information related to rare diseases for basic and clinical researchers, academic and practicing physicians, patients, and the lay public.