User:Savingcase

I have a son with Hunter Syndrome (MPS II) and am very involved in the Hunter Syndrome community. As such, I am attempting to revise the Hunter Syndrome and any MPS related Wikipedia pages to reflect up-to-date and accurate information about the conditions. In addition, medical information about the condition is often written by physicians or researchers without lifelong, first-hand experience with the disease. Such information is vital to reflect a true description of the disease, especially for newly diagnosed families and their friends, researchers, or pharmaceutical companies developing treatments who seek to truly understand the condition in real life.

--Savingcase (talk) 05:13, 9 August 2013 (UTC)