User:Strangelv/MEproject

Scope
The scope of this project includes all articles directly pertaining to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, and may include additional similar, identical, or related illnesses.

Goals
The primary purpose of this wikiproject is to support, expand, and maintain articles pertaining to ME/CFS and other illnesses that may ultimately be clinically indistinguishable from it.

Awareness of this requirement became clear in the process of dividing the unwieldy Chronic fatigue syndrome article into a dozen more manageably sized articles, which needed a centralized point for discussion and coordination, plus other pages already extant that were not uniformly known about by the editors.

Article Construction

 * Melvin Ramsay article is in a sandbox at User:Strangelv/Sandbox1 and needs help

Project name
There are multiple proposed names for this Wikiproject so far, each with potential issues. Consensus is presently lacking, which prevents creation of a permanent location for this wikiproject.


 * ME Project -- Will have name collisions with Middle Earth, although fewer than initially feared. Some of their redirects may need to be changed to make room for us if we go with our original proposed name after all
 * PI Project -- Post Infectious -- are all post-infectious diseases potentially just special cases of ME, or do we risk gaining things outside of our presently intended scope?
 * ME/CFS Project -- Has a slash in the name which can cause technical annoyances with Mediawiki, although it would clearly keep CFS included in our scope even if ME and CFS became clearly separated. We also are already dealing with the technical annoyances elsewhere
 * Nightingale Project -- Honors Florence Nightingale but may be both too obscure and implicative of a POV and association with Dr Hyde's organization
 * Royal Free Project -- Benefits of Nightingale without the association and POV issues; may be too obscure for some users
 * ME&CFS Project -- Like "ME/CFS Project", it indicates that ME and CFS are seperate but related issues, unfortunately becomes "ME%26CFS Project" in a URL.
 * ME-CFS Project -- Similar to "ME/CFS Project" and "ME&CFS Project", but could avoid technical annoyances? However, the dash is often barely visible.
 * ME_CFS Project -- Similar to others, and the underscore doesn't show up when the text is rendered so it looks like "ME CFS Project".
 * MEandCFS Project -- Similar to others, but may look odd?
 * ME CFS Knowledge Project -- Similar to others, just space between ME and CFS, incorporates a compatibility with CDC Awareness Program that Jagra suggested. Awareness probably a word to avoid due to possible interpretation of advocacy on Wikipedia. But then knowledge is redundant as it is expected from an encyclopedia!
 * ME and CFS Database  A bit dry? needs a play on words to be catchy
 * ME and CFS (I can't remember the word right now) When you look at the list of other medical wikiprojects heremaybe that's all that is needed?

Other names have been proposed. If you have proposed a name not listed above, please add it.

Logo/Mascot
A custom graphic is presently being used for the tag templates, but what options can we think of?

Central article split
Split Chronic Fatigue Syndrome into 12 separate articles.

April 2008

 * ME/CFS descriptions -- lacks most descriptions listed in Talk:Chronic fatigue syndrome(added) descriptions lack descriptions
 * ME/CFS therapies -- lacks information in its main article summary; highly uneven coverage; POV dispute since December (POV was resolved before split and the wrong subarticle inherited the tag to boot)
 * ME/CFS history -- still missing already written detailed history concerning the ICD(added)
 * ME/CFS controversies -- not well structured; text duplicated from summary; POV dispute(resolved)

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Requested sources

 * Sources for outbreaks (or clusters) after 1990

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Breaking research
Paste article and research news links here that may be of interest to project editors


 * Researchers from the Centers for Disease Control and Prevention (CDC) and Emory University School of Medicine in Atlanta recently launched the most comprehensive population-based clinical study to date of patients with chronic fatigue syndrome (CFS). The study includes about 90 patients from Atlanta who will participate in the three-day in-patient clinical trial.


 * "We believe this research will lead us to a better understanding of the causes of CFS, both from a psychological and biological standpoint," says Andrew Miller, M.D., Timmie Professor of Psychiatry and Behavioral Sciences at Emory and Emory principal investigator of the study. Ward20 (talk) 20:04, 13 May 2008 (UTC)

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Top priority articles

 * Chronic fatigue syndrome
 * ME/CFS nomenclatures
 * ME/CFS history
 * ME/CFS outbreaks
 * ME/CFS pathophysiology
 * ME/CFS hypotheses
 * ME/CFS descriptions
 * ME/CFS treatments
 * ME/CFS therapies
 * Cultural references of Chronic fatigue syndrome
 * Notable sufferers from Chronic fatigue syndrome

Proposed activities
(insert strong ideas here or start a discussion in talk)

Proposed articles

 * <S>ME/CFS classification -- a history of the ICD classification of ME.</S> Integrated into ME/CFS history after all
 * IACFS/ME -- the international organization of ME/CFS researchers and clinicians
 * Peter Behan -- prominent ME researcher
 * Kenny DeMeirleir - prominent ME/CFS researcher
 * John Kerr (CFS researcher) -- prominent CFS researcher
 * Myalgic encephalomyelitis -- This needs a lengthy discussion; talk page for the redirect is already listed under highly appropriate adoption candidates
 * ME/CFS diets (longer term project in sandbox)
 * ME/CFS organizations -- A place for a comprehensive list, at least until it's time to subdivide it
 * ME/CFS misdiagnosis -- need indirectly indicated by an anonymous user
 * ME/CFS symptom list -- Have not yet seen a comprahensive list of all possible symptoms for the condition, or differential symptoms between different criteria or nomenclature

Highly appropriate candidates

 * Action for ME
 * Ampligen (medication targeted at ME/CFS)
 * Richard Louis Bruno (an expert in Post-Polio Sequelae)
 * Chronic Fatigue Immune Dysfunction Syndrome Association of America
 * Coxiella burnetii several studies implicate CFS after Q fever
 * Epstein-Barr virus
 * Gulf War syndrome
 * Hepapressin (medication targeted at ME/CFS)
 * Human Herpesvirus Six
 * I Remember Me motion picture
 * Marshall, Trevor (developer of the Marshall Protocol)
 * ME Association
 * ME Research UK
 * Mirza, Sophia (patient)
 * Talk:Myalgic encephalomyelitis (active talk page for a redirect) -- proposed as a top priority
 * Nightingale Research Foundation
 * Post-polio syndrome
 * Post-viral fatigue syndrome
 * Teitelbaum, Jacob (author, Fatigued to Fantistic!)
 * Peter Snow (doctor) (Tapanui Flu)
 * Exercise intolerance (defining symptom)
 * Lyme disease controversy (potentially a form of ME)

Maybe to Mid priority candidates

 * Adrenal fatigue (symptom/related)
 * Amitriptyline (tyriclyc antidepressent sometimes used in low doses to help ME)
 * Asthenia (symptom)
 * Brain fog (symptom)
 * Cryptovirus (possible trigger virus)
 * Dysautonomia (symptom/related)
 * Encephalomyelitis
 * Fibromyalgia (comorbid condition)
 * Muscle weakness (symptom)
 * Postural orthostatic tachycardia syndrome (symptom or hypothesized cause)
 * Reticular formation (possibly common site of injury)
 * Myalgia (symptom)
 * Irritable bowel syndrome (comorbid condition)
 * Food intolerance (symptom)
 * Trigger points (muscle spasm symptom)
 * Multiple chemical sensitivity (comorbid condition)
 * Elimination diet (symptom diagnosis)

Iffy potential adoption candidates

 * Valganciclovir (proposed treatment)
 * Dark Therapy (used for multiple illnesses)
 * Low dose naltrexone (used for multiple illnesses)
 * Transfer factor very limited studies done with CFIDS patients
 * Antiretroviral drug (drug class)
 * Arthralgia (symptom)
 * Bioresonance therapy (dubious therapy)
 * Chair Yoga (therapy option)
 * Duloxetine (SNRI antidepressant used to treat FMS; does that count?)
 * Fructose malabsorption (sometimes symptom)
 * Glyconutrient (dubious treatment)
 * Hypermobility (rare symptom)
 * Hypersomnia (sometimes symptom)
 * Hypothalamic-pituitary-adrenal axis (arguable symptom)
 * Intravenous immunoglobulin (off-label treatment)
 * Page v. Smith (messy court case involving a patient)
 * Stealth-adapted virus (controversial hypothesis)
 * Sauna (proposed therapy)
 * Electrical sensitivity (some say related?)

Unchecked articles linking to ME/CFS

 * Clinomorphism
 * Enterovirus
 * Essiac
 * Infectious mononucleosis
 * Islamic medicine
 * Islamic psychological thought
 * Malaise
 * MELISA
 * Methylphenidate
 * Morgellons
 * St Patrick's Hospital
 * Tapanui

Notable patients and alleged patients

 * Moved to Talk:Notable sufferers from Chronic fatigue syndrome

Wrongly linking to ME/CFS

 * <S>Warren G. Harding</S> now pointing to Fatigue (medical)
 * <S>Layne Beachley</S> now pointing to Fatigue (medical)

Cultural References

 * On Grange Hill, Amy Phillips' character Jessica contracted ME

Researchers, activists, et c.

 * Martin Lev (patient and activist)
 * Richard Bentall (experimental psychologist)
 * Katharine, Duchess of Kent (former activist while misdiagnosed with ME)
 * Lau Wai Shing (researcher)
 * Mady Hornig (researcher)
 * Erica White (nutritionist)