User talk:ACELIN97

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I hope you enjoy editing here and being a Wikipedian! Please sign your name on talk pages using four tildes ( ~ ); this will automatically produce your name and the date. If you need help, please see our help pages, and if you can't find what you are looking for there, please feel free to ask me on my talk page or place  on this page and someone will drop by to help. Again, welcome! Liz Read! Talk! 00:53, 11 February 2024 (UTC)

February 2024
Hello ACELIN97. The nature of your edits gives the impression you have an undisclosed financial stake in promoting a topic, but you have not complied with Wikipedia's mandatory paid editing disclosure requirements. Paid advocacy is a category of conflict of interest (COI) editing that involves being compensated by a person, group, company or organization to use Wikipedia to promote their interests. Undisclosed paid advocacy is prohibited by our policies on neutral point of view and what Wikipedia is not, and is an especially serious type of COI; the Wikimedia Foundation regards it as a "black hat" practice akin to black-hat search-engine optimization.

Paid advocates are strongly discouraged from direct article editing, and should instead propose changes on the talk page of the article in question if an article exists. If the article does not exist, paid advocates are strongly discouraged from attempting to write an article at all. At best, any proposed article creation should be submitted through the articles for creation process, rather than directly.

Regardless, if you are receiving or expect to receive compensation for your edits, broadly construed, you are  required by the Wikimedia Terms of Use to disclose your employer, client and affiliation. You can post such a mandatory disclosure to your user page at User:ACELIN97. The template Paid can be used for this purpose – e.g. in the form:. If I am mistaken – you are not being directly or indirectly compensated for your edits – please state that in response to this message. Otherwise, please provide the required disclosure. In either case, do not edit further until you answer this message. Usedtobecool ☎️ 04:47, 12 February 2024 (UTC)


 * Do you volunteer/work for the TESS Research Foundation? Usedtobecool ☎️ 04:48, 12 February 2024 (UTC)
 * Thanks for reaching out! I'm actually an MD/PhD student at Brown University studying translational neuroscience, specifically working on SLC13A5 Epilepsy. Given that I work with SLC13A5 Epilepsy patients and am working towards a PhD in studying SLC13A5 Epilepsy, I had wanted to add more information to the Wikipedia page on SLC13A5 Epilepsy so that it would have more information for the general public. I don't work for the TESS Research Foundation nor do I expect to receive any form of compensation from them-- I've interacted with them on numerous occasions given that many of the SLC13A5 Epilepsy patients I currently work with/their families are a part of TESS Research Foundation and quite a few of the clinicians/researchers studying SLC13A5 Epilepsy are affiliated with the organization. I had added information on the TESS Research Foundation to the Wikipedia page on SLC13A5 Epilepsy because they do quite a bit of work lobbying for the patients themselves, whether it be trying to get ICD10 codes for the disorder from the NIH or partnering with drug development companies for precision medicine or hosting meetings where laboratories that study SLC13A5 Epilepsy can freely discuss their work. I didn't know that bringing up this patient organization would interfere with Wikipedia's neutral point of view, nor did I realize my edits would be such a source of contention-- happy to discuss further if there are any concerns!
 * Long story short: I don't volunteer or work for the TESS Research Foundation, though I've interacted in professional settings with them. I did not receive or expect to receive compensation for my edits. ACELIN97 (talk) 05:49, 12 February 2024 (UTC)
 * Since you're from a medical background, you should have no trouble following the following: Wikipedia is a tertiary source; its core content policies are no original research, verifiability and neutral point of view. Uncited additions are likely to be original research or be unverifiable. In most articles, they are sometimes tolerated because Wikipedia is a work in progress, but not so with medicine articles, which I am sure you can appreciate. So, the text you add needs to be cited, and it needs to be cited to sources that meet WP:MEDRS, a more stringent than usual requirement, which I am sure you can also appreciate. Off the top of my head, you added something like "Get in touch with the TESS foundation", which was straight-up advertisement for recruitment. We just don't do it, conflict of interest or no. And, that is what gave me the impression that you may be working for them. Your relationship with the organisation appears to be a grey area. I would still advise that you use the talk page of the article and make edit requests about adding that organisation to the article. Citing the organisation itself about how great the organisation is does not seem appropriate. If secondary reliable sources have not written about the organisation touting its role, it may be too soon to include. In general, I would suggest using the talk page once your edit gets reverted, which has happened multiple times already. Best, Usedtobecool ☎️ 06:27, 12 February 2024 (UTC)
 * Thanks for letting me know! I didn't know about the policy on no original research articles-- there ultimately are only one or two review articles about this particular disease simply because it's rare and only recently discovered, but I'm happy to revise and remove my primary source citations and replace them with secondary source citations. So sorry about not using the talk page; I'm very new to editing on Wikipedia and I wasn't very sure how to use the talk page since the page itself was empty. I'm happy to leave off information about the TESS Research Foundation given the justified concerns. ACELIN97 (talk) 06:42, 12 February 2024 (UTC)
 * Discussions can be started by anyone, as need arises, even on empty or uncreated talk pages. You may wish to check out WP:MED/WT:MED to find editors with interest/familiarity with the coverage of medicine on Wikipedia. One more thing, you are or will probably become one of the most prominent researchers on it. So, if and when you are about to cite your own paper, the guidilines are at WP:SELFCITE. Good luck! Usedtobecool ☎️ 07:06, 12 February 2024 (UTC)
 * Hi, ACELIN97, please let me second that invitation to WT:MED. Wikipedia talk:WikiProject Medicine is where all the cool editors hang out.     It's a good place to ask questions about finding good sources for medical content or writing style.   We could use another editor who knows something about epilepsy.  Feel free to put the group's page on your watchlist, or stop by to say hello some time. WhatamIdoing (talk) 00:33, 14 February 2024 (UTC)