User talk:D.a.powell99

Exploding Head Syndrome

I have contributed a paragraph to EHS describing my experiences as a sufferer. It was edited out and I replaced it. Why?

Because it's true.

Because it helps more than stuffy professionals.

I spend my life fighting underinformed professionals that deny standard treatments to mental health patients, thus blighting their lives.

The thorough understanding of any condition is more than linking to published articles. I made my contribution to help those, like myself, hearing terrifying things in the night-time.

It may also help those professionals looking for a skim read.

My experiences are useful - a case study unfiltered through a second party.

The content I provided did not claim to be anything but anecdotal - there is no referencing to accredited sources whatsoever...except myself and what I went through.

How does this have no value to the subject? It is what it says it is - is there a problem with 1st hand accounts?

I have sat in conference listening to a world expert in a condition that I have and thought 'This is very good, but he's missing a component'. Case study after case study was wheeled out and dissected - I had common ground with them all. But what I really came away with was a sense of being utterly patronised - sidelined as fodder. Not only that, the 'essence' of the experience was missing, because he couldn't imagine living with it.

So if you find inaccuracy in my account - fine. Bring it up. But if you are trying to monopolise conditions so that only outside observers are allowed to contribute that makes you a petty minded paternalist. D.a.powell99 (talk) 00:06, 19 April 2018 (UTC)