User talk:Deenie1

My daughter recently died in hospital after suffering intermittent severe headache for six months.She was initially hospitalized for a week whilst various tests were done -eg MRI, CT scans, X-rays, radioactive material injected into shunt to check drainage - all of which showed no abnormality. The hospital put the pain down to stress or migraine. I took her home where she continued to suffer severe pain - she was unable to get out of bed, had weakness in her body which made it hard for her to walk, she was unable to return to work and was unable to get to the toilet on several occaisions. Her memory was very bad and she would repeat herself over and over asking the same questions or repeating the same story. I took her to the local GP several times and I also called the ambulance to take her back to hospital where again they sent her home saying it was migraine or stress. I continued to tell the doctors that it was more than that and something needed to be done to help her - she could not continue suffering this pain. I called the ambulance again which took her to hospital. Again they said it was migraine/stress and put her on a drip with strong painkillers. Within 6-7 hrs she was dead.

Does anyone know anything of what it could possibly have been? I feel the doctors were thorough within the realms of their knowledge. I think that this condition is rare or may not even be known. I need to find some sort of answer so any information would be most welcome. I need to ensure if possible that this does not happen again.11:26, 10 July 2010 (UTC)