User talk:Dianneh36

Hi There, My son has suffered from alice in wonderland syndrome for the past couple of years, he is 12 yrs old now and thinks he will never be rid of it! When we spoke to his consultant pediatrician he knew nothing about the syndrome it was only because we came across an article in the newspaper that we could research it and then tell his consultant. My son gets extremely scared while having an attack so i have to take him and hide him under our office desk in the dark so that he cannot really see anything around him to calm him down, i also have to give him a food bag to help get his breathing back to normal as he goes into a panick attack. I have now read loads of articles etc. online and feel abit better to know that he will probably grow out of it. I cannot understand why in this day consultants know nothing about things like this, we were really afraid for our son and we went to see his consultant thinking he would be able to put our minds at rest but in the end we had to tell him all about it. This syndrome has ruined my sons life as he is afraid to stay at friends houses incase it happens there or has missed out on school trips because he is afraid that if he had an attack then everyone would either laugh at him or be afraid of him. My son has also told myself and a teacher that he wishes he could get a gun and shoot himself so that he doesn't have to keep going through it. Can anyone imagine what its like to have your son/daughter and their teacher tell you this, I am constantly on edge worried about whats going through his mind. If anyone can give me any helpful hints i would be deeply greatful. Signed A Really Worried Mum.x