User talk:Dp825/sandbox/ProfSuggestions

YOUR ORIGINAL CONTRIBUTION TO THE WIKI

Research and Funding The Centers for Disease Control and Prevention announced nearly $1.2 million in new funding to help states develop systems to collect data on the issues faced by people living with sickle cell disease.Currently, only two states – California and Georgia – work with CDC on the Sickle Cell Data Collection program to collect population-based, comprehensive health information about people with sickle cell disease. This funding brings to nine the total number of states in the Sickle Cell Data Collection program.By building capacity for additional states to collect data on sickle cell disease, this new one-year cooperative agreement builds the framework and a road map for recipients to gather unique data and conduct in-depth analyses to better understand the needs and improve the health of this vulnerable population.In 2018, President Trump signed the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act, which provides for a national surveillance and prevention program. It authorizes the award of grants for three broad purposes: Collecting and maintaining data on sickle cell disease health outcomes and carrying out various public health activities that include education and training of health professionals at the community, local, and state levels; supporting local and state laboratories that conduct tests to detect sickle cell disease; and evaluating best practices for the prevention and treatment of complications from sickle cell disease.

In 2018, President Trump signed the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act, which provides for a national surveillance and prevention program. It authorizes the award of grants for three broad purposes: Collecting and maintaining data on sickle cell disease health outcomes and carrying out various public health activities that include education and training of health professionals at the community, local, and state levels; supporting local and state laboratories that conduct tests to detect sickle cell disease; and evaluating best practices for the prevention and treatment of complications from sickle cell disease.Sickle cell disease is an inherited red blood cell disorder. Healthy red blood cells are round, which helps them move easily through the body’s blood vessels. With sickle cell disease, these cells are crescent moon-shaped, like a farmer’s sickle, and can get stuck, especially in small blood vessels. This keeps blood from flowing properly, which can damage the body’s organs and cause severe pain. While the expanded Sickle Cell Data Collection program will provide better estimates of the prevalence of sickle cell disease, it has been previously estimated that about 100,000 Americans have this disease. It is most common among people of African descent.

Disparities in funding exist between sickle cell disease (SCD) and cystic fibrosis (CF), according to a new study published in JAMA Network Open. For SCD, the disparities may be associated with decreased research productivity and novel drug development.Although both diseases received a similar amount of federal government research funding between 2008 and 2018, the researchers note that SCD is 3 times as prevalent as CF. In addition, the US birth rate of SCD is 1 in 365 black individuals while the US birth rate of CF is 1 in 2500 white individuals.The researchers believe that because of the gap in private support and the association between funding with quality of life and survival, the federal government should increase its funding of SCD.

https://www.cdc.gov/ncbddd/hemoglobinopathies/scdc-factsheet.html

https://onlinelibrary.wiley.com/doi/abs/10.1111/trf.13961

MY ASSESSMENT

This is a really promising contribution but needs some work. There's definitely info that doesn't need to be here, and it's definitely not in your own words. It's also pasted into the top of the article, which is not appropriate.--Liliput000 (talk) 23:05, 5 July 2020 (UTC)

MY SUGGESTIONS

to create a subheading under Society and Culture, have it come after Eklam's, and call it Research and Funding. Then SWITCH the order of the two chunks of information I've preserved for you below. You want to talk about disparities first, then about some promising new initiatives. Talk about this in your own words and cite your sources. This may mean you end up with two sentences instead of two paragraphs. Or something like it. That's OK. If you'd like to keep the sentences in your sandbox and have me look at them and move them to the page myself, I'd be happy to do this. Let me know!--Liliput000 (talk) 23:05, 5 July 2020 (UTC)

Research and Funding


 * SUMMARIZE this information in your own words

The Centers for Disease Control and Prevention announced nearly $1.2 million in new funding to help states develop systems to collect data on the issues faced by people living with sickle cell disease.Currently, only two states – California and Georgia – work with CDC on the Sickle Cell Data Collection program to collect population-based, comprehensive health information about people with sickle cell disease. This funding brings to nine the total number of states in the Sickle Cell Data Collection program.By building capacity for additional states to collect data on sickle cell disease, this new one-year cooperative agreement builds the framework and a road map for recipients to gather unique data and conduct in-depth analyses to better understand the needs and improve the health of this vulnerable population.In 2018, President Trump signed the Sickle Cell Disease and Other Heritable Blood Disorders Research, Surveillance, Prevention, and Treatment Act, which provides for a national surveillance and prevention program. It authorizes the award of grants for three broad purposes: Collecting and maintaining data on sickle cell disease health outcomes and carrying out various public health activities that include education and training of health professionals at the community, local, and state levels; supporting local and state laboratories that conduct tests to detect sickle cell disease; and evaluating best practices for the prevention and treatment of complications from sickle cell disease.

Disparities in funding exist between sickle cell disease (SCD) and cystic fibrosis (CF), according to a new study published in JAMA Network Open. For SCD, the disparities may be associated with decreased research productivity and novel drug development.Although both diseases received a similar amount of federal government research funding between 2008 and 2018, the researchers note that SCD is 3 times as prevalent as CF. In addition, the US birth rate of SCD is 1 in 365 black individuals while the US birth rate of CF is 1 in 2500 white individuals.The researchers believe that because of the gap in private support and the association between funding with quality of life and survival, the federal government should increase its funding of SCD.

https://www.cdc.gov/ncbddd/hemoglobinopathies/scdc-factsheet.html

https://www.ajmc.com/newsroom/study-finds-funding-disparities-between-sickle-cell-disease-cystic-fibrosis