User talk:Genomewiki

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Please remember to sign your messages on talk pages by typing four tildes ( ~ ); this will automatically insert your username and the date. If you need help, check out Questions, ask me on my talk page, or, and a volunteer should respond shortly. Again, welcome! SwisterTwister  talk  23:54, 15 April 2016 (UTC)

Help me!
I am hoping to learn a little bit more about why the Undiagnosed Diseases page was merged, or what deems a merge?

There wasn't a result in the Merge Discussion area for this. I hope we just didn't miss or make a mistake on our end. If so, can someone please help point it out? I'm having a hard time pinpointing it.

Merging it in with Rare Diseases defeats the entire purpose and mission of recognizing Undiagnosed Diseases. Fortunately, we succeeded with the State of Utah officially recognizing it and I recall linking to the source where the official announcement by Utah's Governor Herbert was made.

Undiagnosed Diseases is not a "trend" or made up term. It has important significance in genetics, genomics, and medicine overall. It continues to be referred to in peer reviewed articles, studies, and projects backed or supported by insitutions such as Harvard, the White House, and many others.

I do not blame anyone who assumed it may be best merged with rare diseases, unless it was a wikipedia bot that did that. However, this term is going to become much more well known and recognized in the next couple years and our goal was to begin creating a valuable "hub" for the millions of people worldwide who will be listening and searching for information on this very subject.

We hope to continue to make wikipedia the "hub" for where this information can be found.

We are able to see notices on the Rare and Undiagnosed Diseases Community pages. However, this is significantly different, although it will not seem that way since it's such a "new" category. Also a category that will most certainly be heard about quite a bit in the next few years.

We had two important resources in our Undiagnosed Diseases page, at least from what I recall:

--- Undiagnosed Disease Network (happy to see that this wasn't merged into Rare Disease Network or another) --- Utah Governor Herbert officially recognizes Undiagnosed Diseases by declaring April 29 Undiagnosed Day (another related, linked, but separate category or page that disappeared from wikipedia.)

We have quite a few more wikipedia and valued external resources (including .gov and .edu) to cite for Undiagnosed Diseases.

More to be added to the official page when back up.

Genomewiki (talk) 23:10, 1 June 2016 (UTC)Genomewiki


 * The merge was concluded by, without discussion it seems, which means that you will have to ask them for the reasons. – Finnusertop (talk ⋅ contribs) 00:04, 2 June 2016 (UTC)
 * All the facts about diseases provided by the merged article were actually about rare diseases. There were no reliable sources discussing undiagnosed diseases. Thus the options were to merge the content into an article it was actually relevant to or to delete the page outright. Even if there were reliable sources explicitly discussing undiagnosed diseases, adding that content to the article on diagnosis may well be more appropriate. The Fox News piece is not a reliable source for medical content and basically just gives a personal anecdote, no information about undiagnosed diseases in general. Huon (talk) 00:23, 2 June 2016 (UTC)
 * On an unrelated note, you should take note that Wikipedia does not allow shared use of accounts. Only one person may have access to an account, ever. If several people want to edit Wikipedia, each of them should create an account of their own. Wikipedia also is not a crystal ball; if this term "will be heard about in the next few years", we'll wait and see what was said about it, not write an article proactively that anticipates future coverage of the term. Huon (talk) 00:29, 2 June 2016 (UTC)
 * From memory, there was a small spate of articles being created around this subject in April (Rare and Undiagnosed Diseases Community appeared a few days later from another user). The undiagnosed diseases article prior to merging just talked about people who were "living with one of 7,000+ rare diseases" and then talked about support communities, rather than saying anything to distinguish an undiagnosed disease from a rare one. I assumed that the two terms were covering the same ground - if your disease is undiagnosed after many attempts to diagnose it, it is because it is rare. --McGeddon (talk) 07:17, 2 June 2016 (UTC)
 * I would guess that "undiagnosed disease" refers to what is technically called SWAN. If so, then the redirect can be retargeted. Regards, — kashmiri  TALK  22:00, 3 June 2016 (UTC)