User talk:Grammielammie

i am new to this so please bear with me. my daughter, 43yrs old, has a monster schwammoma tumer that is sharing blood vessels with her brain stem we have been battling this monster for 8 yrs and up until mothers day, this year, she was managing fairly well. could drive, take care of children, very hard for her but she is a fighter on mothers day, she lost the use of her legs. could feel them but could not walk. we have been to loma linda hosp. pomona nuero hosp. in and out of acute cre facilities. and she is now in kindred, los angeles, long term care. they are supposed to be trying ti wean her off the vent alator but can't seem to get her oxygen to stabilize long enogh to do that. she is also on a feeding tube. some days very aleert and conscious, others not so much. keeps a low grade fever but believe it is due to the nuero activity rather than infection with the adjoining of the bloos vessels of the tumor and brsin stem, there is no way to seperate the two. she has paralysis on her right side. she has had 4 re-sections and 8 crainiotomies. has undergone the chemo/radiation/gamma knife. all of it. surgery is out of the question. i guess my question is, have any of you had any issues with this type of tumor and if so, anyone got any ideas ? she has had the absolute best care but seems to respond to no one, except me. i live in az. and she is in l.a. my hubby suffered a major MI in dec and is not recuping as well as he should and i, myself have been diagnosed with progressive MS. i am fine but have studied and sttudied this minster until i am at my wits end she has 2 precious girls. 9 & 13. dad is working from home., thankfully works for disney and they havve set up offices at the house. we are grasping at straws. hope someone, somewhere has any kind of positive answers for us. thank you loke robinson