User talk:Hillbillie1979

As i am trying to bring awaerness to Arnold Chiari Malformation Disease because it does effect the lower part of your brain and causes bad swelling and pain throughout the whole body and makes your limbs numb and we hold walks all over the united states to bring all chiarians like myself and we also wear purple ribbons to show our support for each one of chiarians.

The symptoms can very from these to that but here's symptoms of the disease and you will see why it's very important to bring awareness to this disease: swelling in head,skull,neck,shoulders and also fluid build up in your spine and neck,shoulders,skull and it also causes tinggling,numbness in hands and feet,legs,arms and it also causes shacking throughout the body that can't be contorled and causes visiual problems and dizziny ness,vomting,nause, heart palpitions and arrhythmia and makes muscles weak and stay in pain and medicitions doesn't help this disease then you may have to have surgery to have a shunt put into the lower part of the skull and brain to have room for the brain to expand because we are called "Big Brainers" or "Zipper Heads" or "Warriors" so please we have to show our support for this because to many of chiarians are dying way to soon by unexplained deaths.

That's most chiarians do have to go to sites to get funding because medicial bills are to high and so is mediciens we have to take just to stay alive for our selfs and family and friends and so on.

We have lot's web sites to get information about this disease that's killing us very slowly dying because most us don't have doctors that knows anything about this disease. heres some web sites you can get information from www.conquerchiari.org and www.webmd.com\chiarimalformationdisease ...

I want to pay Tribute to some of the fallen chiari warriors and IH and EDS and so on!!


 * 1) 1. Chip Vierow his real name is Charles Ross Oscar, he was from Lakeland,Minnesota, He passed away November 6,2008 he was founder of WACMA.com,he had been fighting along a courageous battle with a liver disease (which isn't associtaed with chiari). He spent the last weeks intensive care unit a waiting a liver transplant, but became to sick before a liver became avaiable for him. He was also the owner of the chiari pillow and support group leader "Fearless Leader" he was a twelve year leader of serivce to the WACMA,Chiari Community Advocate,ZipperHead,Author of "Chips Adventure" on Chips Chiari Pages,Creater of the Chiari Pillow. He will forever be remembered for his faith and services to the chiari community god rest your soul my chiarian brother.

(Paying Tribute to the fallen warriors)


 * 1) 2. Is Byrce Autry was a six year old little boy and on March 25,2013 he had fell out of a wagon, he wasn't breathing,his heart had stopped beating. He died a week later from Chiari Malformation Disease, which is a rare condition that causes the brain tissue to proturde into the spinal canal. Aria now wears a white,ceramic heart on a chain around her neck. She and Ian also carry a little ceramic hearts in their pockets-gifts from the life center northwest to which the couple donated their little boys organs to. Bryce Autry will always remain in hearts because he was a little chiari warrior god bless his family today amen.

(Paying Tribute to the fallen warriors)


 * 1) 3. Is Garion Michael Baber from Orange County,Florida featured on Dr. G Medical Examiner Episode, Garion was an eight year old little boy who died in his sleep;reason for his death was ruled 4 months later as Chiari, a diagnosis a doctor had labeled on Garion earlier but never told his parents of the facts until it was to late. Garion well forever remain in hearts for ever more because he is a sweet Chiarian Angel now god bless his family amen.

(Paying Tribute to the fallen warriors)


 * 1) 4. Is Len Lannon from Philadelphia,Pennsylvania June 12,2008 Len had brain and spinal surgery on May 1,2008, He suffered from Chiari Malformation. In addition to the brain surgery, two cervial vertbrae were also repaired. Len suffered some major complications on the third day of recovery, He developed bacterial meningitis, and suffered a stroke. Well Len wilm always remain in our hearts and will never be for gotten god bless the family amen.

(Paying Tribute to fallen warriors)


 * 1) 5. Is Clinton Botha East Timor,NewZealand March 7,2009 A young newzealand soldier who served in the East-Timor,Botha's had a promising career was being hampered by debiliting headaches,he was told surgery would relieve pressure on his brain. However, twelve hours after that minor operation, Clinton died of respiratory failure at Chris Church Hospital. Clinton will be missed and never for gotten god bless his family amen.

(Paying Tribute to fallen warriors)


 * 1) 6. Is Brianna Lynn McCarthy June 4,2009 Peacefully passed away at the Health Sciences Center St. John's NLon thursady June 4,2009. She was only 34 years old. She will be missed and never for gotten god bless her family amen.

(Paying Tribute to the fallen warriors)


 * 1) 7. Is Rebecca Pence June 2009 she peacefully passed away. She will be missed but never for gotten amen.

(Paying Tribute to fallen warriors)


 * 1) 8. Is Jessica Depassano "Chiari" Wayne,New Jersey August 27,2009 She was only 25 years old till she had went into a coma for three weeks until her death. She will be missed but never for gotten amen.

(Paying Tribute to the fallen warriors)


 * 1) 9. Is Melinda Kay Fancher who had (IH)Weatherford,Oklahoma January 5,2010 she will forever live on in our hearts and souls and never be for gotten amen..

(Paying Tribute to the Fallen Warriors)


 * 1) 10. Is little baby boy named Brayden Asher (Chiari type lll) Tomball,Texas April 12,2010 he was only a month with chiari type 3 he will always remain in our hearts and through us that will happen god bless his family amen...

(Paying Tribute to the fallen Warriors)


 * 1) 11. Is Charla Cochran (Chiari) Dallas,Texas March 18,2010 A Mom of three great children; Collin 14, Maddie 12, Macie 6 she was married to the love of her life, Jeremey. Had an endoscopy on 3/13 and died in her sleep 5 days later, she will never be for gotten amen.

(Paying Tribute to the fallen warriors)


 * 1) 12. Is Kelly Jean Davis Morrill (Chiari)(EDS)(Tethered Cord)(Hydrocephalus)(Subcraneal In Stability) Layton,Utah October 10,2009 She had two decompressions surgeries,second one was a full sinus,csf leakage on both,viralmeningits,shunt placement surgery,cranial placement surgery, ll shunt revisions, staff meningitis,TC surgery. Kelly 44 passed away peacefully on Saturday,October 10,2009 after a long and valiant battle with chiari malformation disease, Kelly was a loving wife,mother,daughter,sister,aunt and friend. She was born February 4,1965 in Ogden,Utah . Attended Utah State University,served the deaf as a sign language missionary in the Virginia Roanoke LDS mission. Kelly started a web site to provide help,support and imformation for others who are effected by Chiari Malformation Disease, she is survied by her husband,Rob;her four children Tyler,Chace,Sam,and Sarah. She will for ever be remembered in our hearts amen.

(Paying Tribute to the fallen warriors)


 * 1) 13. Is Sarah Thomas (Chiari) Joliet,Illinois October 14,2009 she was only 22 years old, Thomas eventually learned about renowed nureosurgeon based in Milwaukee, Dr. Dan Heffez, who had preformed operations on hundreds of patients with similar symptoms since the late 1990's. The published results were encouraging, said the teen, whose familiarity with medicial Vernacular was