User talk:Jbelsey

Hi Teri I'm not in my office today but I will check out what I have on Monday. I have the past 20 years issues of Headache and Cephalagia so there should be something useful there

Jonathan Jbelsey 10:44, 14 October 2006 (UTC)

Hemicrania Continua
I just started an article on hemicrania continua. Any input? There was a link to it from Headache, but nobody had written anything there yet.

Thanks! --TeriRobert 17:20, 13 October 2006 (UTC)

Thank you, Jonathan. Are you an AHS member? IHS? I've been invited to join the IHS and have been thinking about it even though I seriously doubt being able to travel to their conferences. The Goadsby, Silberstein, Dodic book that I used as a source is one I discovered at last year's AHS conference. It's a good reference.

--TeriRobert 12:56, 14 October 2006 (UTC)

Jonathan,

Is this you... http://www.jbmedical.com/companyprofile.htm? Once I saw "Jonathan" here, I thought I recognized your name. Pleased to "meet" you.

--TeriRobert 12:58, 14 October 2006 (UTC)

Hi Teri - yes that's me! Found your website too - nice to meet you. As you will have seen, my area of work is evidence-based medicine: we try to improve the quality of medical educational materials to ensure that clinical advice is based on sound scientific principles rather than clinician bias - sometimes a bit of an uphill struggle! I work across a broad range of disease areas but have been involved with migraine professionally for the past ten years (and as a patient for the past 40 years).

I am a memeber of the IHS, although I haven't been to one of their meetings for a few years now. I published a series of health economic analyses of triptan therapy a while back and presented the data in various forums, including AHS and IHS. Unfortunately the field of migraine therapy is rather quiet at the moment, with no fundamentally new treatments expected until the end of the decade, so I haven't been writing much. I agree that Peter Goadsby's book is an excellent source - he is a superb neurologist with a first class analytical mind. I don't know Sol Silberstein and David Dodick very well, but their published work certainly seems to be of a high standard (although I once had a rather public argument with Silberstein about the value of scientific evidence in normal clinical paractice - he wasn't convinced!)

Regarding hemicrania continua, much of the published data still relates to case reports - the neurology community is still very uncertain about where this disease entity fits in the headache spectrum. There were several interesting articles in Cephalalgia in November 2001 on the classification and long-term treatment, but really nothing definitive since. I could send pdf versions of these papers to you if it would be helpful. Alternatively I would be happy to comment on your draft if you like.

Jonathan Jbelsey 10:31, 16 October 2006 (UTC)

Good morning, Jonathan. Ahhhhhhhh, a fellow Migraineur. We've been dealing with this disease for similar lengths of time. I was a presenter at a patient advocacy leadership meeting a couple of weeks ago where one of the speaker spoke on evidence based medicine. Found it very interesting.

Met Goadsby at a couple of AHS meetings. Interesting and kind man. Silberstein's partner, Bill Young, is my doctor so I've talked with Silberstein on several levels. It seems that public arguements with him are nothing unusual. You're not the first person to tell me they've engaged in one with him. It almost seems to be a badge of honor. ;-)

Hemicrania continua is a disorder I find both interesting and frustrating. Thanks for the Cephalalgia reference. I have the CDs that can with the December issue of Headache a couple of years ago, so I can go to those for the November, 2001, Cephalalgia articles. Thanks! Just need to find some time to concentrate on it. Too many iron in the fire. If you're so moved to comment on the draft, please feel free. I thought I'd at least get it going now and work on it along.

--TeriRobert 13:12, 16 October 2006 (UTC)

Morning Teri. I've added some detail to the hemicrania continua article 1) There is a little on the epidemiology (although there aren't really enough patients to be terrible prescriptive on the subject). 2) I have put in a couple of sentences on alternatives to indomethacin for treatment. 3)In the diagnostic criteria section I have put in a note about the alternating sides variant. There has also been a report of bilateral HC, but as this has yet to be confirmed, I decided to leave this out. Jonathan Jbelsey 08:45, 17 October 2006 (UTC)

Morning, Jonathan. Great additions to the HC article. Nice working with you.

--TeriRobert 15:41, 17 October 2006 (UTC)

Help on Hemicrania page
Jonathan,

Somoene messed with the HC page and deleted a good deal of the work we'd done. Do you know how to "revert" to a previous version?

Thanks!

--TeriRobert 16:38, 10 November 2006 (UTC)

Figured out how to do it myself. Thanks!

--TeriRobert 16:43, 10 November 2006 (UTC)