User talk:Karen Hyder

Hello. I note that you have been trying to add URLs to your website on stroke and subarachnoid hemorrhage. Reviewing your page, I do not doubt that it is a worthwhile endeavour and of certain use for people with neurovascular diseases. However, Wikipedia is a general purpose encyclopedia and generally does not include links to self-help or support groups, with the possible exception of large nationwide/international organisations with a very substantial membership. The relevant policy is External links.

Given your own background (as stated on your website), do you have any comments on the subarachnoid hemorrhage page? Together with another contributor I am presently improving the page, and was wondering whether you had anything to add. I am aware of the fact that the page does not significantly cover the long-term disability that affects a significant proportion of SAH patients; this is something we need to include. Please offer your comments on Talk:Subarachnoid hemorrhage. JFW | T@lk  13:01, 18 March 2008 (UTC)


 * I wish that instead of reinserting your link you had responded to my message above, or on Talk:Subarachnoid hemorrhage. Please note that repeatedly inserting unsuitable links despite warnings is a suitable grounds for being blocked from editing Wikipedia. JFW | T@lk  14:37, 18 March 2008 (UTC)

Well, I've just had some communication from Delldot and I'm so very thankful, to hear from somebody that has some empathy and displays some human kindness.... thanks for saying that my endeavours are worthwhile....have you had a SAH...? I did .... I'm not too good with the tech stuff, or my English, so that's why I didn't reply.....I'm 45 with brain damage, how old are you? I really look forward to hearing from you ..... as you know my website is behindthegray.net and my e-mail is karen.hyder@gmail.com and instead of spouting the SAH facts, then you can talk to somebody that's had it and contact me through the website, without hitting the delete button, because you can't do this face to face....and cut out the txt book stuff....do I care about being blocked from Wiki? no, I don't, but just noticed that the Brainhelp website for SAH has also been deleted......you're doing more harm than good.....as Walter who runs Brainhelp is also a very good man....Good luck and feel proud of yourself, as you're denying people that need help with SAH post recovery for your own satisfaction.....you haven't improved the page, but made it worse, by deleting the external links ...hope that you can live with that.....I know that I couldn't xx PS. I haven't had warnings from any administrator from Wiki, but please advise me if you are one, as my website link offers a lot more than just a forum, including facts, if you would care to take a few minutes to read it......please state your reasons for this website being unsuitable?


 * I am indeed an administrator. There is no point in making insulting comments ("Good luck and feel proud of yourself").
 * I have provided support (see WP:EL) for my opinion that websites of the kind you run are not suitable. That does not detract from your previous experiences (with which I sympathise) and any part of the site, but I disagree with your opinion that personal experience is more important than closely studied facts.
 * If you want other contributors to offer their opinion, please leave a message on Talk:Subarachnoid hemorrhage. JFW | T@lk  19:37, 18 March 2008 (UTC)

Sorry, but if you make a decision to delete an external resource for SAH'ers to go to, then you need to take responsibility for denying people a place to seek help and knowledge, if in your opinion "they're not suitable" ..... I've had many visitors and members coming from Wiki..... when you hit the "delete" button for external links....you've made that decision and it's down to you to deal with it, sorry but I didn't do it, you've made your point and like I say, you may be able to take facts and figures from medical papers....so can I........but you're now denying the actual people that you're writing about, a place to seek help....that's something that you have to live with..that's not insulting and I do wish you luck....if you're ruthless enough to take away a couple of lines of text that brainhelp and behindthegray took up then I'm sure that you will do extremely well in your professional life. You still haven't managed to say why behindthegray isn't suitable and as you can see, if you had wanted to contact me privately I supplied an e-mail address and I was hoping to have less confrontation from you....

I'm still dealing with recovery after a SAH and like I say, if you want to know more, then please feel free to e-mail me....but my time is valuable and I would much rather spend it with somebody that needs help post SAH/Stroke, rather than bicker about about a web link......just deal with the fact that you've deleted two links that have helped a lot of people......in fact hundreds of people....so live with it.

Is personal opinion about life after a SAH more important than "studied facts" well, why don't you pose that question to me or to the people that use the website and see what they say..... have you had a SAH? or are you just quoting papers and research that somebody else has done, but hasn't been carried out by patients ..... if life was that simple post SAH we wouldn't have one member on our website and we wouldn't be talking. Thanks for your sympathies of my "previous experience", perhaps I'm also insulted, as I'm disabled!..... what does that mean? I live with having brain damage 24/7 ...... it doesn't just disappear overnight like a cough and cold, and when you write articles about brain damage etc that's what you need to consider.... the actual people looking at it aren't just med students, they're people that are trying to find out more about their illness and need more than facts, figures, nice English and pretty photos..... I'm sorry but I give up....