User talk:S-B-Sermone

Username and copyright
Welcome to Wikipedia. I noticed that your username, "ADNP-KRF", may not comply with our username policy. Please note that you may not use a username that represents the name of a company, group, organization, product, or website. Examples of usernames that are not allowed include "XYZ Company", "MyWidgetsUSA.com", and "Foobar Museum of Art". However, you are permitted to use a username that contains such a name if it identifies you individually, such as "Sara Smith at XYZ Company", "Mark at WidgetsUSA", or "FoobarFan87".

Please also note that Wikipedia does not allow accounts to be shared by multiple people, and that you may not advocate for or promote any company, group, organization, product, or website, regardless of your username. Please also read our paid editing policy and our conflict of interest guideline. If you are a single individual and are willing to contribute to Wikipedia in an unbiased manner, please request a change of username, by completing this form, choosing a username that complies with our username policy. If you believe that your username does not violate our policy, please leave a note here explaining why. Thank you.

One of your recent additions has been removed, as it appears to have added copyrighted material to Wikipedia without evidence of permission from the copyright holder. If you are the copyright holder, please read Donating copyrighted materials for more information on uploading your material to Wikipedia. For legal reasons, Wikipedia cannot accept copyrighted material, including text or images from print publications or from other websites, without an appropriate and verifiable license. All such contributions will be deleted. You may use external websites or publications as a source of information, but not as a source of content, such as sentences or images&mdash;you must write using your own words. Wikipedia takes copyright very seriously and persistent violators of our copyright policy will be blocked from editing. See Copying text from other sources for more information. Galobtter (pingó mió) 14:29, 20 January 2019 (UTC)

Response
I was unaware of the username conflict. I will update. I am co-author I’d several ADNP publications and a parent to a child with the disorder. Your information is completely inaccurate and it is causing families a lot of confusion. The Syndrome is de novo on 206 of the 213 cases reported. How do I go about updating this site? ADNP-KRF (talk) 06:29, 9 February 2019 (UTC)
 * You can update the article, but do so without copying material from other websites; and review WP:MEDRS before editing the article. You can ask at WikiProject Medicine if you need help or want to get more eyes on the article. Galobtter (pingó mió) 21:41, 9 February 2019 (UTC)