User talk:Thalassemianme

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SingHealth Inspirational Patients and Caregiver Award 2011 Winner

Goh Chun Hui - THALASSEMIA N ME

"Thalassemia can be debilitating - the patient requires regular blood transfusion and experiences bouts of tiredness, headaches, dizziness, fatigue and lack of concentration, yet 22-year-old Goh Chun Hui is determined to live life to the fullest," says Vincent Lim, KKH's Corporate Communication Assistant Director.

Despite being born with such a condition, Chun Hui insists on living a normal life. As his bone marrow is unable to produce red blood cells, blood transfusions once every four weeks or so is what he has to live with for the rest of his life! The alternative would be a bone marrow transplant. Unfortunately, both his parents and his sister are not suitable donors.

Having to live with frequent blood transfusion and daily medication plus countless number of full blood counts, cross-matches, doctor's visits, blood tests and screenings, etc., can be disruptive, not to mention disheartening but Chun Hui makes it a point to stay positive. He also fully aware that this condition puts him and others like him at a disadvantage. It is precisely for this reason that he takes it upon himself to educate and inspire them, not only by staying positive but also by sharing his own experiences and keeping them updated of the latest developments in the Thalassemia World. Chun Hui is particularly excited about gene therapy and although this is still a couple of years away, he has already started spreading hope to others. He does this through his website and his blog as well as through Facebook, Twitter and Youtube.

"Knowing that in spite of his condition, he is positive, hopeful and is lending hope to others, encourages me in the challenges that all of us face as we go through our work and daily lives," says Vincent.

Like any young man, Chun Hui has his hopes and dreams. He admit that "if not for my illness, I would have loved to take up a full-time job and spend more time doing things like going to the gym, going for holidays, etc." But not one to allow himself to be set back by a "mere" condition, Chun Hui's goal is to one day set up a website that attracts high traffic. Looks like he is already heading in the right direction.

Website - http://thalassemianme.webs.com

Source of Acticle - http://issuu.com/meshmag/docs/singhealth_inspirational_patient___caregiver_award

Thalassemianme (talk) 17:53, 6 June 2012 (UTC)