Wikipedia:Patient-Centered Outcomes Research Institute/PCORI Annual Meeting Pre-Event October 2022

Wikipedia is a frequently used resource accessed by patients and clinicians, as well as the general public, when they are looking for information on health care. While Wikipedia is an open resource and editable by anyone, there are many rules for how medical and scientific data can be shared. Wikipedia has tremendous potential for reaching both public and professional communities. As a result, it is important to edit Wikipedia with high-quality evidence from trustworthy sources.

This PCORI Edit-a-thon is intended for both internal staff and external partners of PCORI, and is free and open to the public. Sign-up information for this event may be found here. After registering at this link, you will be emailed a GoToWebinar link for the Edit-a-thon.

This landing page provides logistics and registration information for this event, and is being led by Jeffrey Keefer, PCORI's Wikipedian-in-Residence.

Pre-Work before the Edit-a-thon begins
All attendees should complete this Pre-Work before the session begins.

Before you attend the editathon, you will need to:
 * 1) Sign up for a Wikipedia account of you do not have one, and
 * 2) Register for the session using the link below so we can track output and outcomes from the event.

If you already have a Wikipedia account, you can use that one. If so, skip to the "Please register and check-in here" link below and then simply log on to register for this session.

If you do not yet have a Wikipedia account, when you click the link below to register for this session you will be invited to create one. Some people use their real name on Wikipedia, yet others use a pseudonym for privacy reasons. All Wikipedia contributions are tied to your username indefinitely, including mistakes and edits to controversial topics. For example, the facilitator of this editathon itself uses the username FULBERT instead of an actual, legal name. This is up to you, though it is one of the few things on Wikipedia that is very difficult to change afterward, so please consider this before creating a Wikipedia account.

Whether you have a Wikipedia account or will create one now, make sure to associate your account with your email address and respond to the confirmation email. This will allow you to get notifications and alerts of changes to your edits if you choose, and will also allow Wikipedians to contact you if there is a need. Please note, your email will not be publicly visible or given to anybody else without your consent. Additionally, a confirmed email address is the only way to recover an account if you ever forget your password.

> >  >  Please register and check-in here  <  <  <

Agenda
The two-hour edit-a-thon webinar will introduce you to Wikipedia and why it is a highly utilized website, how basic Wikipedia editing works, and how the editing of medical and health-related articles is actively monitored at a higher standard than most other articles. You will begin editing articles yourself in real-time. The session will wrap-up with a debrief and suggested next steps and ongoing support. No previous editing of Wikipedia is expected.

All participants should have access to Wikipedia via their web browser during the session.


 * 0:00-0:05 - Welcome
 * 0:05-0:20 - Intro to Wikipedia & Why we should care about it
 * 0:20-0:60 - Editing 101
 * 1:00-1:45 - Wikipedia editing of health articles
 * Add at least one sentence
 * Add at least one citation
 * 1:45-1:55 - Check-in & Questions
 * 1:55-2:00 - Debrief & next steps

Getting started with editing Wikipedia
After we introduce Wikipedia and explain basics about editing (including WikiProject Medicine's own guidance, How to edit), these are the starting points when you are ready to begin editing Wikipedia health articles (and here are some brief Steps to Edit an Article on Wikipedia that may help with the following steps:
 * 1. EITHER locate a Wikipedia article that needs additional credible sources or one that has knowledge gaps which need to be filled.
 * Search Wikipedia for articles related to Maternal Health, Health Equity and Disparities, Intellectual and Developmental Disabilities, Telehealth, or a health topic of your interest, and see what needs are there for additional citations.
 * See lists of Medical articles that require clean-up or Medical articles that are missing (and need to be written).
 * 2. OR find a fact in a credible source, such as within a journal article or systematic review via academic databases, and see which Wikipedia articles may benefit from this evidence you identified.
 * 3. You may want to consider some of the research PCORI has supported as a starting point, such as:
 * Maternal Health
 * Cervical Ripening in the Outpatient Setting: A Systematic Review and a link to the systematic review
 * A Rapid Review of Telehealth Strategies for the Delivery of Maternal Health Care
 * Health Equity and Disparities
 * Addressing Disparities portfolio and related projects from other portfolios
 * Intellectual and Developmental Disabilities
 * Intellectual and Developmental Disabilities projects with results
 * Telehealth
 * A Rapid Review of Video-Teleconferencing for Disease Prevention, Diagnosis, and Treatment; a link to the report; and a journal publication on the report
 * Telehealth projects with results
 * 4. Insert your fact (a sentence or two is ideal!) into the Wikipedia article you identified, add the citation (DOIs are especially helpful here!), and then click Publish (save) with a brief summary of the edit you made to help future editors.
 * 5. Congrats, you did your first edit!

For additional guidance:
 * Refer to Identifying reliable sources (medicine) for specific guidance in how medical articles get edited.
 * here is a tutorial at Editing Wikipedia. Note that you can take the medical lesson, if you like.

External resources

 * PCORI Completed Research Projects
 * PCORI Completed Research Projects with Results
 * PCORI in the Literature: Systematic Reviews
 * Highlights of PCORI-Funded Research Results
 * PCORI Evidence Updates from systematic reviews and funded research studies in concise, accessible formats

Other support
Organizations providing Wikipedia support for this presentation include the following:

All of these organizations endorse this classroom outreach and educational experience. The facilitator, User:FULBERT, is the Wikipedian-in-Residence at PCORI and is a board member of Wikimedia New Your City. The nature of the support is as follows -
 * Patient-Centered Outcomes Research Institute is hosting this hosting and supporting this event.
 * Wiki Project Med is the international volunteer chapter of the Wikipedia community supporting the development of Wikipedia's medical coverage.
 * Wikimedia New York City is the volunteer chapter of the Wikipedia community in the New York City metro area.
 * University of Virginia assists with presentation resources.

Contact
For post-session questions or support, ping me on User_talk:FULBERT or Email me.

Developing Wikipedia is a collaborative effort. Thanks to everyone who contributes to the success of this and other programs.