Talk:Cavernous hemangioma

Cavernoma Alliance UK
Cavernoma Alliance UK (CAUK) is a charity created by people affected by cavernoma – otherwise known as cerebral cavernous malformations (CCM), cavernous haemangioma or cavernous angioma. Our mission is to improve the quality of life for those affected by cavernoma through education, support and promotion of research.

The CAUK website (www.cavernoma.org.uk) provides:

Information about the condition Networking and support opportunities (CaverBuddies) in your local area Access to an extensive video library with talks by leading experts Information on CaverCentres and CaverClinics Becoming a member of the CaverCommunity

Ian Stuart — Preceding unsigned comment added by Ianstu100 (talk • contribs) 16:04, 8 November 2015 (UTC)

article unreliable
cerebral angioma (=cavernoma) is a different pathologic entity! This is confused multiple times in this article and cavernoma etc should not be redirecting here. If I have time I will come back to clean this up, as it stands the article is dangerously confusing. — Preceding unsigned comment added by 68.65.175.12 (talk) 20:29, 14 March 2016 (UTC)

Move article?
I think what this article is actually describing is a venous malformation (see vascular anomaly), or a cerebral cavernous malformation, which I think would be in line with the ISSVA classification, instead of a hemangioma, which I think is a misnomer. Fantumphool (talk) 20:52, 5 April 2016 (UTC)

slightly confused
BeckySue (talk) 17:59, 4 April 2017 (UTC)
 * 1) 18 states there's never been any bleeding but had found there was. I'm just looking for clarification or clearer language please.

Gut bacteria may be involved
An articlepublished in Nature May 10, 2017 - titled 'Endothelial TLR4 and the microbiome drive cerebral cavernous malformations' - reports that "... upstream activators of this disease pathway have yet to be identified. Here we identify endothelial Toll-like receptor 4 (TLR4) and the gut microbiome as critical stimulants of CCM formation." (See also this NYTimes article) Other studies have also made gut biome a suspect in Parkinson's disease. Twang (talk) 15:25, 2 December 2017 (UTC)