Talk:Short bowel syndrome

note
Reference for 6 feet of functional small intestine needed before short bowel syndrome appears: Johns Hopkins Family Health Book, 1st ed., Johns Hopkins University. Other references cite 50% or approx 10 ft. of small intestine must be preserved, others list as little as 3 ft. (since absorption occurs in the first 100 to 150 cm of the small intestine, ref. eMedicine - Short Bowel Syndrome) Hfwd 14:18, 9 Dec 2004 (UTC)

Short bowel syndrome
The Crohn's Colitis of America has a lot of information about SBS. This is just one of many links that can be found. I think the information should be expanded instead of all the lists which prevent extension of this article. Of course this is just my opinion. -- Crohnie Gal Talk  12:36, 5 July 2007 (UTC)

Omegaven
This page is receiving quite a few edits claiming that the use of Omegaven vs Intralipid as TPN decreases risk of hepatic fibrosis. The truth is that this is widely suspected and has been the subject of a 2-patient case report, but no hard data exists. Dr Puder is highly popular with parents of SBS children on TPN (see numerous blog posts), and has sparked a nationwide trend despite the fact that Fresenius Kabi is not planning an FDA application for Omegaven in children.

I think this article should not mention the Omegaven issue. The reason is that not every SBS patient receives TPN, and that the Intralipid link is still too fresh. JFW | T@lk  01:25, 23 August 2007 (UTC)


 * I removed a link to another wiki and a OP statement per WP:EL policy. Spryde 15:00, 23 August 2007 (UTC)

WP, I think you are looking at this in the wrong way. Whether or not physicians or parents choose to use Omegaven is something that is up to each individual but they deserve to know about it. We were lucky to find Omegaven quickly after Nora was born, within 2 weeks of birth, but it took us 3 months to get approved and and get the Omegaven for her here. We just stumbled upon another SBS blog which led us to Omegaven but many families are not finding Omegaven information until 6 months or 1 year or more down the road when their babies are already very sick. I understand your position about whether Omegaven should be listed on Wikipedia due to its limited documented evidence but I can tell you that you are doing the wrong thing by editing it out. People should have the opportunity to know about their options. If your child was going to die would you not want to know Omegaven could be an option for them? If you found out about it after your child died how would you feel? I hope that you will reconsider yoru decision and put the Omegaven information back up. Please let me know your decision because I plan on fighting to get this information on Wikipedia if your decision is to not post it. Thanks. Oh and to answer your question I am not sure when Dr. Puder is going to release more data. I can tell you though if you look at all of the children that are currently on it you will find they are all doing better. I understand this is not clinical data but Wikipedia is FULL of incorrect information and to keep information like this out that could save babies lives seems completly ridiculous to me. Again please let me know your decision on whether or not you will be posting the information back up. Thanks. Montana Thomas —Preceding unsigned comment added by Montanathomas (talk • contribs) 21:37, August 27, 2007 (UTC)


 * I wish you had awaited my response before undoing my edit without as much as leaving an edit summary. I also suggest you tone down your rhetoric on "fighting to get this information on Wikipedia". I'd like to stick to the issues, and come to a solution that is acceptable to all concerned. If consensus cannot be reached, dispute resolution guidelines can always be used.
 * Your arguments are completely valid if Wikipedia was a news site, a blog or some other forum. But it is an encyclopedia, which means that rather than speculate it is meant to be completely factual and neutral. Despite all the hype, all the documented evidence consists of 2 case reports, and even in that paper Dr Puder's team make it clear that they have not made a causal link with Intralipid. As a result I think I am correct in being somewhat conservative. Again, please don't be combative (I am sympathetic to your cause but skeptical on the present evidence). JFW | T@lk  22:03, 28 August 2007 (UTC)


 * I'm not totally opposed to mentioning Omegaven; after all, the study was published in a solid journal and has generated quite a bit of interest. But we need to be conservative and responsible about not overselling the results, and everything we add needs to be verifiable in reliable sources. If we mention it, I think a sentence or two along the lines of "A recent case report of 2 patients suggested that Omegaven may improve hepatic fibrosis, though trials of this approach have not yet been published." MastCell Talk 22:44, 28 August 2007 (UTC)

I would like to see a citation for this lead
The lead just got added this;

Short bowel syndrome (SBS, also short gut syndrome or simply short gut) is a malabsorption disorder caused by the surgical removal of the small intestine, or rarely due to the complete dysfunction of a large segment of bowel. Most cases are acquired, although some children are born with a congenital short bowel. It usually does not develop unless a person has lost more than two thirds of their small intestine. I'd like to see where it says that two thirds needs to be removed before short bowel becomes a problem please. My understanding isn't that amount of bowel lost but what part is lost.

Also what are the thoughts of directing this article to other articles of bowel disease like the Crohn's article? -- Crohnie Gal Talk  16:35, 7 February 2008 (UTC)

Short Bowel Syndrome Lifestyle Section
I would like to see a section added about Short Bowel Syndrome and the lifestyle the patient will end up having after their diagnosis. I was diagnosed with SBS in 1986 before my birth, almost resulting in my death, today I am one of the very few lucky pediatric patients who has been able to rid of parental nutritional support, but there are many limitations as to what a patient can and can not eat, and physical limitations as well. Also there can be multiple medical conditions can come with Short Bowel Syndrome, such as Metabolic Acidosis, Anemia, Osteoporosis, Muscular Atrophy, and Seizures to name a few that I know of, all of which can alter a patients lifestyle further. —Preceding unsigned comment added by Surgems2386 (talk • contribs) 06:19, 6 May 2008 (UTC)


 * I think you should go for it. If you have the reliable sources for all of this, and I know there are many of them, then make a sub-topic for 'Lifestyle changes' and add in what your thoughts are.  I am sure others will come and help you set it up.  I think this is a good idea.  On a different note, glad to hear you were able to get off the nutrutional support and eat, I know this is very rare and the diet to eat has to be hard to figure out.  Good luck to you, -- Crohnie Gal  Talk  12:41, 6 May 2008 (UTC)

Would you take references from a Top Rated Pediatric Gastroenterologist and his Clinical Nurse Specialist from the University of Nebraska Medical Center. If yes I could create something for the lifestyle, as myself being very knowledgeable on the topic (I am surgems2386, lost my old name, created a new one). —Preceding unsigned comment added by Ajablonski2386 (talk • contribs) 03:06, 6 January 2009 (UTC)

I added the information about NutreStore and Zorbtive. To respond to you question about growth hormone being administered at home, yes, after being trained by their physician, patients can quite easily inject themselves. See the website www.zobtive.come and see the patient guideline. The glutamine is oral, and is very easy to take. If you have any questions, please let me know. Otherwise, I would appreciate the material added on February 2, 2009 left in place. Thanks. —Preceding unsigned comment added by DanKimbell84 (talk • contribs) 00:31, 4 February 2009 (UTC)


 * You added the material but it is difficult to read. I think it's because some of it is supposed to be refs but aren't set up as refs.  Would you please read what you inserted again and make any correction so that it's clearer and has references?  Thanks, -- Crohnie Gal  Talk  11:09, 4 February 2009 (UTC)

Prognosis incomplete
The first paragraph refers only to "newborn infants" while the second paragraph does not specify an age range, but refers specifically to "small intestine transplant" which I understand is just one treatment. Could this section be expanded? — Preceding unsigned comment added by Bumface11 (talk • contribs) 13:53, 10 August 2014 (UTC)

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