Talk:Syringomyelia

Added link
Added link to the Christopher S. Burton Syringomyelia Foundation. It's a new foundation, but I hope it gets attention and a lot of funding. I think Wikipedia can help. - Cyborg Ninja 03:51, 29 June 2007 (UTC)

treatment comment
Article says this: "In some patients it may also be necessary to drain the syrinx, which can be accomplished using a catheter, drainage tubes, and valves. This system is also known as a shunt. Shunts are used in both the communicating and noncommunicating forms of the disorder. First, the surgeon must locate the syrinx. Then, the shunt is placed into it with the other end draining cerebrospinal fluid (CSF) into a cavity, usually the abdomen. This type of shunt is called a ventriculoperitoneal shunt and is particularly useful in cases involving hydrocephalus. By draining syrinx fluid, a shunt can arrest the progression of symptoms and relieve pain, headache, and tightness. Without correction, symptoms generally continue."

This appears to be discussing a couple of problems one which is directly related to the syrinx the other to hydrocephalus. It Should note that 1. A shunt can be placed to relieve hydrocephalus by a ventriculoperitoneal shunt which may assist in reducing the symptoms of a syrinx (and specifically drains the ventricles in the brain to the peritoneum). 2. A shunt may also be placed directly into the syrinx (a syringiopleural (drains to the chest) or syringioperitoneal (drains to the peritoneum). Also it is worth noting that sometimes a 'honeycomb' effect might be present where one shunt into the spine is inadequate. I am however, no doctor. Yendor of yinn (talk) 00:07, 6 October 2011 (UTC)

Recent revert
A user recently added some material to the first paragraph, but marking it as a "minor" edit. A "minor" edit is like when you correct someone's spelling. The writing wasn't formal though I do agree that somewhere in this article a reference should be made to the fact that a syrinx can remain stable over a period of time. But if you're going to add something new, please cite it, otherwise you shouldn't be adding anything. Cyborg Ninja 19:16, 3 June 2007 (UTC)

ARTICLE REFERENCES
I have added two important points to this article without adding the reference because I don't actually know enough about the editing to add it! The two points I added are (1) syrinx drainage does not necessarily mean a reduction or elimination of symptoms and (2) impact injuries to the thorax region highly correlate with the occurence of a syrinx. The reference book supporting these two statements is: "Syringomyelia: Diagnosis and Treatment", Authors Jörg Klekamp and Madjid Samii, Springer publishers, 2002, ISBN 3-540-42084-3. Well, it would be great if someone could incorporate this reference into the main article!

Image and history
I added an image of my own. The syrinx looks relatively small and I could crop it if anybody wants me to. I'd also like to add a history section to this article. Good idea or no? -- Cyborg Ninja 07:28, 19 February 2007 (UTC)

Is this needed or is it just advertising?
I've just removed the Litigation section which consisted of links to four law firms. It just looked like advertising for these particular law firms to me. WP:ISNOT a directory --Spondoolicks 10:15, 12 January 2006 (UTC)


 * I also went ahead and deleted the MediFocusLegal link. It was nothing more than an advertisement. Did anybody bother to even look at the page before adding it? "Click below to order your guide as a download file ($135.00) that you can read on your desktop computer or print out yourself. Please let you know how it helps you with your Trauma and Syringomyelia case." That's basically all that was on the page, except for a few random pictures on the bottom that you also had to order. -- Cyborg Ninja 20:58 29 Nov 2006 (UTC)

Extent of Article
This article really barely sctatches the surface. Even so,it should be retained.

Syringomyelia is a degenerative neurological desease of the spinal cord. There is no known cause, no known cure, and no effective long term treatment. It is considerered a devasting condition.

The majority of victims suffer chronic pain and disability (read some degree of paraplegia or quadriplegia) due to the physical destruction of nerves as the syrinx expands. Sringomyelia may be either a birth defect or trauma induced; hence the lawsuit nonsense which doesn't belong here.

The "21,000" number should be stricken. It originates with the asap.org website (the old asapforsm.org site). That number has been floating around for over 20 years. I have never seen any documentation for it.

Plural of 'syrinx'
The plural form of "syrinx" is "syringes," not "syrinxes." The 'x' sound is pronounced as a 'ks' sound in many languages, and its hard sound complement is the 'g' sound. Unfortunately, with the influence of the French language, many times we pronounce a 'g' as a 'j' sound when it should be a hard 'g' sound as in the word "go." The problem is, I think if I started putting "syringes" in this article, it will be altered by someone who will put it back to the incorrect "syrinxes." - Cyborg Ninja (talk) 13:05, 23 May 2008 (UTC)


 * According to Webster's New World College Dictionary, both "syringes" and "syrinxes" are acceptable plural forms. Also, a quick google suggests to me that in this context, "syrinxes" is the more common (and therefore more likely to be understood by those reading this article). 62.25.109.195 (talk) 10:18, 3 April 2009 (UTC)

Reminders
Remember that only English-language material belongs on the English syringomyelia page. There are other language versions of this article, and you can put other language links there. Also do not add wikilinks to articles that do not exist yet. As an alternative, there is a wiki dictionary that may have those terms in it. Also, adding a wikilink to a term that is spoken of interchangeably with the title of the article itself is not useful. - Cyborg Ninja (talk) 18:00, 2 September 2008 (UTC) Other reminder: There is no such thing as a "spinal column." The two components of the spine are the "vertebral column" and "spinal cord." —Preceding unsigned comment added by Jmr30 (talk • contribs) 15:23, 7 February 2010 (UTC)

The Project Charity
A user recently added a link to The Project Charity, which is a charity for young children with rare diseases. It seems to be a fairly new organization. It was in the wrong section so I deleted it, but it could be added to the Organizations section. I believe that links for organizations should be specific for those that deal with just syringomyelia and closely related diseases like Chiari. I believe that's the policy. But there is already a link for the National Organization for Rare Diseases, but that is a long-established organization and I think it's federal? It has many resources for those with SM. The Project Charity doesn't seem to have any at the moment. What is your view? - Cyborg Ninja  00:23, 2 February 2009 (UTC)

Gibbs phenomenon on MRIs
The Gibbs phenomenon article states (without source) that MRI scans can sometimes produce artefacts that resemble the symptoms of syringomelia - leading to misdiagnosis. Worth a mention? 62.25.109.195 (talk) 10:13, 3 April 2009 (UTC)
 * I don't feel it belongs unless it is a phenomenon directly related to syringomyelia, placed in a category on misdiagnoses, part of other medical articles that use MRIs for diagnosis, and/or has a citation. This would belong in the MRI article and not this one, in my opinion. - Cyborg Ninja  06:45, 25 April 2009 (UTC)


 * Here are some sources: http://mriquestions.com/gibbs-artifact.html https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4340093/ http://www.bonepit.com/Resident%20teaching%20old/MCQ/Writtens/UCSF%201996/UCSF%201996.htm https://www.mr-tip.com/serv1.php?type=art&sub=Gibbs%20Artifact 89.172.16.124 (talk) 00:24, 25 December 2019 (UTC)

"the cause"
perhaps "pathophysiological cause", "pathophysiology" or some other heading would be more appropriate for the heading "the cause".

AriaNo11 (talk) 23:34, 2 August 2009 (UTC)

Number of Americans affected
I removed the clause "or about 21,000 Americans" (referring to prevalence) because it seemed to be POV. Reason: it is unclear why we should care more about the number of Americans affected than about the number of Canadians, Australians, Russians, etc... affected. In addition, the number adds little information, because it can easily be calculated from the given prevalence rate and the country's population figure. --Chl (talk) 09:02, 10 August 2009 (UTC)
 * Hmm, perhaps because the figure is from a study that solely refers to Americans? You could fund your own study to cover every human being in the world, if you had the money. It is after all, a prevalence rate. If you want to delete the figure for a lack of citation, that would be fine. But if you wrongfully delete it for NPOV, you may be reprimanded. - Cyborg Ninja  04:57, 11 August 2009 (UTC)

Research using implanted tissue for treatment
ISCI (Institute of Spinal Cord Injury) describes cases where embryonic/fetal spinal-cord tissue has been implanted in the syringomyelia cyst of various patients. Perhaps it should be mentioned in the article. See http://isci.is/Internationaldatabase/DatabaseTableofContents/5EmbryonicTissueSyringomyelia/ -- Libido (talk) 20:49, 3 December 2009 (UTC)

People With Syringomyelia
I have Syringomyleia, and it is a condition that can really effect your life. When I was 4 yrs old my syringomyelia was growing. Unfourntantely I fell out of a two story house, and I landed on my back. I went to the ER to get surgery. During surgery it collasped. There was a 50/50 chance it would grow back and it did. I am not allowed to play sports, yet I do anyway. I have to be extra careful and can't get hit in the back or else I could be paralyzed or blind. The risks of surgery are death, paralyzation, and blindness. I barely escaped getting surgery this year because it only grew a little bit. I wost likely will have surgery in the coming years. I will need support from my friends and family. Syringomyelia is a real and rare condition. Twinsisterslove (talk) 21:22, 24 October 2010 (UTC)

CSFinfo organization
I've noticed that the website CSF Info is repeatedly added and removed in the Organizations section. This seems to have been going on for quite some time. Is there any reason for this? - Cyborg Ninja  06:08, 11 March 2011 (UTC)

Needs cleanup
This article needs cleanup. A lot of people have been adding sentences with no references, or plan for how their added material coordinates with the rest of the article. It's becoming a mess with no clear direction. - Cyborg Ninja  01:57, 4 October 2011 (UTC)

Image without a caption
There is an image without a caption on this page SmallEditsForLife (talk) 17:40, 26 January 2014 (UTC)