Wikipedia:Integrating Patient-centered Outcomes Research into Wikipedia

  Integrating Patient-centered Outcomes Research into Wikipedia PROJECT PAGE

Project Overview
“Integrating Patient-Centered Outcomes Research into Wikipedia” is a two-year engagement project led by John Willinsky, Stanford University, and Lauren Maggio, Uniformed Services University of the Health Sciences, and funded by the Patient Centered Outcomes Research Institute (PCORI). The project aims to advance PCORI’s goals to build a community able to engage with patient centered outcomes research (PCOR), by exploring the extent to which this goal can be facilitated by dissemination and education efforts through Wikipedia. Health professionals and trainees are increasingly seeking to practice evidence-based medicine (EBM) and as such provide a key resource for translating PCOR into meaningful content for the public by increasing the extent to which Wikipedia entries on health matters are supported and informed by PCOR research, and thus ensuring that patients and their loved ones have access to patient-centered health information in making healthcare decisions.

This engagement is driven through two principal activities. First, through this Wiki project site, which consolidates all of the existing research and educational materials relevant to the training of health professionals in the best ways to edit Wikipedia, effectively access and assess PCOR, and practice EBM. Second, we are collaborating with faculty, staff and students at four health profession education institutions—namely, Queen’s University School of Medicine, Icahn School of Medicine at Mount Sinai, Monash University and Western Michigan University Homer Stryker M.D. School of Medicine—on aspects related to the design, implementation and evaluation of their educational interventions in EBM and Wikipedia. The initial goal is to identify the most promising practices and explore improved means of integrating these practices into a well-curated set of curriculum materials, which are to be made readily accessible, as well as augmented by others, through this Wiki project site.

Links
PCORI: Announcing the Patient Centered Outcomes Research Wikipedia Initiative Project (external link to PCORI website)