Wikipedia:WikiProject CRUK

John Byrne (normally User:Johnbod) is Wikimedian/Wikipedian in residence at Cancer Research UK in London from May to early December 2014, four days per week, using the alternate account User:Wiki CRUK John for edits made in this role (my editing stats (some also on my main account)).


 * Final report at the end of the project in 2015.
 * 2019 event: CRUK Women in Cancer Research Editathon

Objectives
See CRUK's Henry Scowcoft's interview with Medscape.com in September 2014]

From John's WMUK/WMF blogpost (see section below): "Part of the role at CRUK will be to work with the existing medical editors on the English Wikipedia to improve our articles on cancer topics, in particular those on the four common cancers which are widely recognised as having the greatest “unmet need” due to little improvement in survival rates in recent decades. These are cancers of the lung, pancreas, brain and oesophagus. CRUK has just announced a new research strategy with an increased focus on these types of cancers, and my role will complement that. I will also be addressing other cancer-related content, for example in relation to the Medical Translation Project of WikiProject Medicine.

CRUK has access, through its own staff and its access to other researchers and clinicians, to tremendous amounts of expertise, both in terms of science and the communication of science, where they have teams trained and experienced in communicating with a wide range of distinct audiences, from those who write their patient information pages in very plain English to the different teams who produce material for scientists and for general audiences. My boss, Henry Scowcroft, writes for CRUK’s award-winning science blog, and is a Wikipedian. I’ll be exploring a number of approaches in hopes of bringing all this expertise to bear on Wikipedia’s content.

Wikimania 2014 in London, about a mile from CRUK’s HQ, is a great opportunity to bring CRUK and many medical Wikipedians together face to face. A novel aspect of the role is that we are planning to conduct research into the experiences on a range of different types of consumers of Wikipedia’s cancer content. There has been very little formal qualitative research into the experiences of Wikipedia’s readers – we hope this project will begin to address this gap, as well as encourage others to carry out similar projects.

I will also be making presentations and conducting training for key groups of CRUK staff and researchers at their five main research centers in London, Manchester, Glasgow, Oxford and Cambridge. Some of this will be traditional how-to-edit training, but I will also be doing some workshops aimed at people who want to contribute reviews and comments, but who don’t expect to do much editing themselves.

On another tack, I will be working on releasing suitable CRUK images on open licenses and uploading them onto Wikimedia Commons. I think the medical diagrams CRUK has created will be especially useful in Wikipedia articles. We’re already making substantial progress towards a substantial release of content."

Top cancer-related translation targets, from the Popular pages WikiProject Medicine Translation task force list: Cancer, Leukemia, Colorectal cancer, Lung cancer, Breast cancer, Prostate cancer, Stomach cancer, Skin cancer, Health effects of tobacco.

Based on the funding application to the Wellcome Trust, who are funding the project, Wikimedia UK has created a list of the objectives for this project from their point of view. It refers to their strategy structure, which you can see at Strategic goals.

CRUK article reviews
These are initial reviews by the internal people who recently reviewed and revised the CRUK (cancerhelp section) pages on this, with the most useful recent papers, which I have working copies of. The idea is to sort these points out in the article before sending the article for review by other outside specialists.
 * Talk:Pancreatic_cancer
 * Talk:Esophageal_cancer
 * Lung cancer initial review
 * Talk:Brain_tumor (not much to say as too much needs redoing)

Pancreatic cancer has now had a review by an outside clinical expert, has completed a Wikipedia peer review, and is going through a Featured Article nomination

CRUK images released on open licenses
We now have over 400 body diagrams up - not all cancer-specific. More images to follow as the project continues. This is a list of the latest upload. Many thanks to User:Fae for uploading the first main batch. Please help to categorize and use them!

The BaGLAMa2 report shows page views of articles using these images in August, traditionally a low-traffic month, totalled 1.1 million. Subsequent months showed: September, 1.41 million, October 1.43 million, November 1.35 million (cumulative 6.61 million to November). These figures exclude views on mobile & other hand-held devices, which will represent about 30% of total traffic.

Example of an image used (and properly attributed) by the Society for General Microbiology in their blog.

Cancer Statistics
CRUK maintains CancerStats a large web sub-site devoted to cancer statistics, mostly UK but also global. A number of CRUK specialists from the stats team added basic UK stats to several cancer articles on October 3rd - e.g. this, with this note/disclosure on the talk page: "Hi, I'm from Cancer Research UK and going to add some UK stats to the epidemiology section complied from ONS, ISD Scotland, Welsh Cancer Intelligence and Surveillance Unit and the Northern Ireland Cancer Registry as summarised on the Cancer Research UK website". They now plan to do the rest of the 35 cancer types they cover in the same way. What is great is that they are keen to incorporate this into their standard updating procedures.

See: these contributions in particular

Inside CRUK
Email Wikipedia[at]cancer.org.uk - the long-term contact email for CRUK. For now, goes to me as Wikpedian in Residence, and User:HenryScow. Wiki CRUK John (talk) 16:21, 21 July 2014 (UTC)
 * For other CRUK employees and researchers who have received editing training in 2014 see the training section below, and sub-pages.
 * For the 2011 training, see User:HenryScow/CRUK Editors

Meeting up at Wikimania 2014
As part of the pre-conference events, we had a very successful meeting at CRUK, see the event page on the Wikimania site (and planning on Wiki Project Med/Wikimania 2014 meetup), with editors from 5 continents, and several CRUK staff from various departments. Many thanks to all who came! One result can be seen at Wikipedia_talk:Manual_of_Style/Medicine-related_articles, where improvements to some WP:MEDMOS headings that were discussed are being opened to the WP medical community.

Reports

 * Final report


 * Interim reports:


 * May and June 2014
 * July & August 2014
 * September & October 2014
 * November & December 2014

Newsletters
Mainly written for CRUK non- or new Wikipedians.
 * Newsletter 1 September 1 2014
 * Newsletter 2 October 9 2014
 * Newsletter 3 February 2015

My blogs etc.

 * New images released are quickly put to use - my blogpost re the CRUK diagrams and also some Royal Society images is on the global Wikimedia Foundation blog, and also the Wikimedia UK blog here, 11 September
 * CRUK science blog post Wikipedia – is it fit for patient consumption?, 27 May
 * John's blogpost on Wikimedia UK's blog, 20 May, repeated on the Wikimedia Foundation blog, 31 May, Highlights & Global editions
 * CRUK podcast section, interview with me: section from 6:30 to 10:40

Other media

 * BBC News website, 27 May
 * story The Independent, 28 May

Wikimania 2014

 * video of: "Wikipedia and Medicine", Speaker: James Heilman (09:10 to 45:00 on file)
 * "What does a Wikipedian in Residence in the scientific sector do?", John Byrne & Henry Scowcroft of Cancer Research UK, Sydney Poore, Wikipedian in Residence at Cochrane Collaboration. Video on You Tube, starts at 1:10:30
 * "Medical information online; Wikipedia's place in the ecosystem", panel: James Heilman (Jmh649]/Doc James) MD, CCFP-EM, Clinical Faculty member of the Department of Emergency Medicine, Faculty of Medicine, University of British Columbia (Clinical Instructor), Henry Potts, Senior Lecturer, Centre for Health Informatics and Multiprofessional Education (CHIME), UCL Institute of Epidemiology & Health Care (Bondesgesou), Henry Scowcroft (HenryScow) Cancer Research UK's news and multimedia manager, and John Byrne (Johnbod), now the Cancer Research UK Wikipedian-in-Residence (as Wiki CRUK John). Video here, starts 1:03:20)

2011 project
See here. Training was received courtesy of Wikimedia UK for a number of CRUK staff, mostly those who write CRUK material for their websites and other outputs. User:HenryScow is now managing the Wikipedian-in-residence.

Training

 * WikiProject CRUK/LRI training September 24, 2014, session at the London Research Institute on September 24, 2014 (3 hours), for LRI staff. LRI is part of CRUK.
 * WikiProject CRUK/Angel training - other training and sign-ups, in London and elsewhere
 * Shortcut to current session: CRUK training

Links

 * "Being a scientist in the age of Wikipedia" - Wellcome Trust blog, 2011
 * How to read an article history
 * Ten Simple Rules for Editing Wikipedia – excellent essay from PLOS Computational Biology (written by Wellcome Trust Genome Campus people)

Medical
 * 3 minute video for new medical editors or on You Tube
 * Wikipedia:Manual_of_Style/Medicine-related_articles or WP:MEDMOS
 * Wikipedia:Identifying reliable sources (medicine) or WP:MEDRS
 * WikiProject Medicine/How to edit or WP:MEDHOW

Research into Wikipedia and medicine

 * WikiProject Medicine/Research publications
 * Pew on health



Most-viewed Wikipedia cancer articles

 * From WikiProject_Medicine/Popular_pages. Rank/name/Views in April 2014:  59 Cancer 153302; 68 Leukemia 145130; 186 Colorectal cancer 97992; 345 Pancreatic cancer 75656; 355 Lung cancer 74583; 384 Breast cancer 71451;  395 Prostate cancer 70000; 420 Acute myeloid leukemia 67203; 423 T cell 67060; 432 Metastasis 66072; 615 Brain tumor 54299; 659 Cervical cancer 51986; 703 Esophageal cancer 49163; 975 Stomach cancer 39997; 1005 Acute lymphoblastic leukemia 39268; 1027 Ovarian cancer 38704; 1044 Testicular cancer 38331; 1091 Skin cancer 37046; 1336 Oral cancer 31193; 1390 Chronic myelogenous leukemia 30171; 1453 Cancer staging 29174
 * Missing any? Please add - lymphoma is in top 6-7

Notes on articles

 * Histology - long, c300K views pa, only 3 refs
 * Obinutuzumab aka Gazyvara - write up new NICE decision not to fund, 3/10, and Euro approval
 * Chimeric antigen receptor - User:Mxpule interested in working on this.
 * Obesity and cancer - Diet and cancer
 * Blastic phase chronic myelogenous leukemia - merge or at least use link as a ref
 * Brain metastasis - c 80K views pa. Only 1 ref, though text ?competent. Little change since 2011, expert tag since 2010
 * Adenocarcinoma - over 500 K vpa, bad - work now done on this
 * Urachal adenocarcinoma no - article - how rare is this?
 * Tumour classification
 * Clear-cell adenocarcinoma - "Clear-cell adenocarcinoma is a type of adenocarcinoma. Types include: ...." That's it.
 * Surgical oncology no refs at all; discursive.
 * Pancreaticoduodenectomy (Whipple's procedure) About 240k views pa! Rather old, many refs deadlinks. Lots in https://www.ncbi.nlm.nih.gov/pubmed/23856911 (CA Cancer J Clin. 2013 Sep;63(5):318-48. doi: 10.3322/caac.21190. Epub 2013 Jul 15., "Recent progress in pancreatic cancer.", Wolfgang CL1, Herman JM, Laheru DA, Klein AP, Erdek MA, Fishman EK, Hruban RH.)
 * Cancer research - generally pretty terrible
 * Head and neck cancer - confused, few refs

Short, jargon-only

 * Phosphaturic mesenchymal tumor and indeed Tumor-induced osteomalacia
 * Massive giant-cell tumor of pelviacetabulum
 * Esophagogastroduodenoscopy, simple, 120k pv pa

Henry's picks

 * Human papillomavirus - Intro wrong re types


 * Incredibly US focused (tho’ mentions the big European trial): Prostate cancer screening


 * Always a fun topic to fight over:

[Mobile_phone#Health_effects], Mobile_phone_radiation_and_health


 * There is *nothing* on the ‘alcoholic beverage’ page about health, let along cancer…

Alcoholic_beverage but (JB) Alcohol_and_cancer gets 60K vpa and is a terrible article

Only tangential mention of cancer on either of these pages:
 * Obesity, Body_fat - but (JB) Obesity-associated_morbidity gets 17K vpa & is a terrible title, really terrible article. Diet and cancer doesn't cover either.

But there is here: Overweight

http://en.wikipedia.org/wiki/Exercise Under ‘health effects’ – has a section on everything *except* cancer (and mentions obliquely just a couple of times).

Barely mentions cancer: http://en.wikipedia.org/wiki/Hormone_replacement_therapy

Could do with a check: http://en.wikipedia.org/wiki/Air_pollution#Cancer

Likewise: http://en.wikipedia.org/wiki/Carcinogen#Occupational_carcinogens

However, this is excellent: http://en.wikipedia.org/wiki/Superfoods

Popular pages

 * WikiProject Medicine/Popular pages

Cancer site links

 * National Cancer Institute (US)
 * NHS Choices (UK) - main cancer page
 * http://canceraustralia.gov.au/ Cancer Australia - government site
 * Cancer Help UK (Cancer Research UK patient information pages)
 * Pancreatic cancer research - news
 * ACS lifetime-probability-of-developing-or-dying-from-cancer

Event evaluation links

 * Feedback form wmuk:File:Event feedback form template.pdf
 * Sign up sheet
 * Further templates for event pages creation here
 * Boghog citation filler tool

blogs etc

 * WikiLit
 * near-doubling-of-uk-cancer-research-funding-in-less-than-10-years
 * London Research Institute microscopy
 * JISC magazine summarizes Creative Commons licences
 * Young women would rather Google their illnesses than see a GP (especially if it's something they think is embarrassing)